Myotubular Trust

Registered charity 1137177 Registered since 2010

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

5.7y median 1y

average tenure

15y

longest tenure

trustees past 6 years

13.1y

average years in governance

6 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 6The Advancement Of Health Or Saving Of Lives 6

Commercial experience

Professional services 9Business services 1Construction 1

Gaps to watch

Narrow spread of causes across the board

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Related organisations

Amici Dance Theatre Company Similar size; both Disability
Little Sparks Preschool Similar size; both Disability
Kenilworth Community Care Similar size; both Disability
The Open Door Centre (Swindon & District) Limited Similar size; both Disability
The Rooprai Spinal Trust Similar size; both Disability
The Emmes Foundation Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.myotubulartrust.org
Email	contact@myotubulartrust.org
Phone	020 8641 6427
Address	15A BARNARD ROAD, LONDON, SW11 1QT

Finances

£138,416 latest income

Year	Income	Spending
2020	£132,865	£200,271
2021	£144,770	£112,630
2022	£147,462	£97,944
2023	£117,511	£70,876
2024	£138,416	£148,309

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With Disabilities

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE RELIEF OF DISABILITY AND THE EXTENSION OF LIFE FOR BABIES, CHILDREN AND ADULTS SUFFERING FROM MYOTUBULAR MYOPATHY, BY PROMOTING THE STUDY OF, AND RESEARCH INTO, THE TREATMENT AND CARE OF THE MUSCLE WEAKNESS CAUSED BY MYOTUBULAR MYOPATHY.

Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 21 MAY 2010

Trustees (6)

6trustees

59median age

0aged 70+

Andrew Lennox Chair
Anne Lennox
James Roslingage 59
Lisa Bashorumage 38 since 2025
Patricia Allenage 59 since 2011
Zachary Richard Hughesage 30 since 2025

Linked company (Companies House)

Myotubular Trust · 07260229 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 20/05/2010

2 governing document(s) held from Companies House.

Connected charities (0)

No charities share a trustee (from current data).

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