Skip to content
Governance Register
Sign inFind yourself
Find yourselfSign in
Search How it works For organisations For professionals

Edition

United Kingdom (current)IrelandUnited StatesNew ZealandCanadaAustraliaScotlandNorthern Ireland

Registered charity · London

Myotubular Trust

  • 6 trustees
  • Income £147k (2025)
How am I connected?
More
View network map Report an issue

Official record Charity Commission · updated 27th September 2026 · Sources

Network

The large node is Myotubular Trust. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

Do you help lead this organisation? Set up its network · How it works

About

What it does
The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales
Website
www.myotubulartrust.org (opens in a new tab)
Linked company
Myotubular Trust
Registered
2010

Income and spending

  • YearIncomeSpending
  • 2025£147k£315k
  • 2024£138k£148k
  • 2023£118k£71k
Earlier years
  • 2022£147k£98k
  • 2021£145k£113k

Income trend, 2021 to 2025.

Charitable objects

THE RELIEF OF DISABILITY AND THE EXTENSION OF LIFE FOR BABIES, CHILDREN AND ADULTS SUFFERING FROM MYOTUBULAR MYOPATHY, BY PROMOTING THE STUDY OF, AND RESEARCH INTO, THE TREATMENT AND CARE OF THE MUSCLE WEAKNESS CAUSED BY MYOTUBULAR MYOPATHY.

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

6 trustees on the board

5.7y median 1y
average tenure
15y
longest tenure

Trustees past 6 years

13.3y
average years in governance

First-time vs portfolio trustees

First-time (6)

6
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 6The Advancement Of Health Or Saving Of Lives 6

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Professional services 9Business services 1Construction 1

Gaps to watch

  • Narrow spread of causes across the board

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2020
2021
2022
2023
2024
incomespending£138k latest income

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1137177
Status
Registered
Governing document
MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 21 MAY 2010
Companies House
Company number 07260229 · Active
Contact on the register
020 8641 6427 · contact@myotubulartrust.org
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data