The Governance RegisterEdition 2026 · Compiled 12th July 2026

Samuel Hardgrave Harlequin Ichthyosis Research Trust (S.H.H.I.R.T)

Registered charity 1139061 Registered since 2010

Operates: Bromley, City Of London, Croydon, Sutton, Essex, Hampshire, Peterborough City

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

6
trustees on the board
14.2y median 15y
average tenure
15y
longest tenure
4
trustees past 6 years
9.8y
average years in governance
5 vs 0 portfolio
first-time trustees
1
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Education/training 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Other services 1

Gaps to watch

  • Several long-serving trustees could step down together
  • Narrow spread of causes across the board

Boards that share trustees

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Related organisations iRelated organisationsBoards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Websitewww.shhirt.org.uk
EmailAdam.Hardgrave@shhirt.org.uk
Phone02086608673
Address95 The Mount, Coulsdon, CR5 2PW

Finances

£0 latest income

YearIncomeSpending
2021£9,584£12,500
2022£509£3,040
2023£0£0
2024£0£0
2025£0£0

What it does

What

The Advancement Of Health Or Saving Of Lives

Who

Other Defined GroupsThe General Public/mankind

How

Makes Grants To OrganisationsProvides Other FinanceSponsors Or Undertakes Research

Charitable objects

THE TRUSTEES MUST APPLY THE INCOME OF THE CHARITY IN FURTHERING THE FOLLOWING OBJECTS (THE OBJECTS)THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH FOR THE PUBLIC BENEFIT BY PROVIDING FUNDING FOR RESEARCH PROJECTS UNDERTAKEN AND SPONSORED BY CONSULTANTS AND OTHER CLINICIANS IN HARLEQUIN ICHTHYOSIS AT ST THOMAS' HOSPITAL AND BARTS HOSPITAL IN LONDON (AND ANY OTHER HOSPITAL/CONSULTANT PROVIDING SPECIFIC RESEARCH FOR THE DISEASE) AND PROVIDING OR ASSISTING IN THE PROVISION OF EQUIPMENT AND SERVICES FOR THE NEONATAL INTENSIVE CARE UNIT (NICU) AT ST THOMAS HOSPITAL AND THE RONALD MCDONALD HOUSE , WHICH PROVIDES PARENTS WITH FREE ACCOMMODATION WHILST THEIR CHILD IS IN THE EVELINA CHILDREN'S HOSPITAL (IN ST THOMAS' NICU). ('THE OBJECTS')

Governing document: TRUST DEED DATED 1 SEPTEMBER 2010

Trustees (6)

6trustees
49median age
0aged 70+

Connected charities (1)

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