Registered charity · Coulsdon
Samuel Hardgrave Harlequin Ichthyosis Research Trust (S.H.H.I.R.T)
- 6 trustees
- Income £0 (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- The Advancement Of Health Or Saving Of Lives
- Where
- Bromley, City Of London, Croydon, Sutton and more
- Website
- www.shhirt.org.uk (opens in a new tab)
- Registered
- 2010
Income and spending
- YearIncomeSpending
- 2025£0£0
- 2024£0£0
- 2023£0£0
Earlier years
- 2022£509£3k
- 2021£10k£13k
Income trend, 2021 to 2025.
Charitable objects
THE TRUSTEES MUST APPLY THE INCOME OF THE CHARITY IN FURTHERING THE FOLLOWING OBJECTS (THE OBJECTS)THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH FOR THE PUBLIC BENEFIT BY PROVIDING FUNDING FOR RESEARCH PROJECTS UNDERTAKEN AND SPONSORED BY CONSULTANTS AND OTHER CLINICIANS IN HARLEQUIN ICHTHYOSIS AT ST THOMAS' HOSPITAL AND BARTS HOSPITAL IN LONDON (AND ANY OTHER HOSPITAL/CONSULTANT PROVIDING SPECIFIC RESEARCH FOR THE DISEASE) AND PROVIDING OR ASSISTING IN THE PROVISION OF EQUIPMENT AND SERVICES FOR THE NEONATAL INTENSIVE CARE UNIT (NICU) AT ST THOMAS HOSPITAL AND THE RONALD MCDONALD HOUSE , WHICH PROVIDES PARENTS WITH FREE ACCOMMODATION WHILST THEIR CHILD IS IN THE EVELINA CHILDREN'S HOSPITAL (IN ST THOMAS' NICU). ('THE OBJECTS')
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
6 trustees on the board
- Adam Robert Hardgrave since 2011
- James Lester Berry since 2011
- Jamie Hardgrave
- Jon Small since 2014
- Matthew Edward Bidwell since 2011
- Roland Burton
Trustees past 6 years
- Adam Robert Hardgrave since 2011
- James Lester Berry since 2011
- Jon Small since 2014
- Matthew Edward Bidwell since 2011
First-time vs portfolio trustees
First-time (5)
- Adam Robert Hardgrave since 2011
- James Lester Berry since 2011
- Jamie Hardgrave
- Jon Small since 2014
- Matthew Edward Bidwell since 2011
Portfolio (1)
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
- Narrow spread of causes across the board
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1139061
- Status
- Registered
- Governing document
- TRUST DEED DATED 1 SEPTEMBER 2010
- Contact on the register
- 02086608673 · Adam.Hardgrave@shhirt.org.uk
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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