The Governance RegisterEdition 2026 · Compiled 12th July 2026

The Annabelle Rose Foundation for Spinal Muscular Atrophy

Registered charity 1139272 Registered since 2010

Operates: Throughout England And Wales, Scotland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

9
trustees on the board
12y median 13.5y
average tenure
14y
longest tenure
4
trustees past 6 years
7.4y
average years in governance
8 vs 0 portfolio
first-time trustees
1
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

General Charitable Purposes 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 1

Gaps to watch

  • Narrow spread of causes across the board

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Related organisations iRelated organisationsBoards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Websitewww.annabellerosefoundation.co.uk
Emailcontact@annabellerosefoundation.co.uk
Phone03008000762
Address5 Reeve Road, Stansted, CM24 8SJ

Finances

£74,357 latest income

YearIncomeSpending
2020£24,723£23,813
2021£45,544£41,838
2022£45,912£48,051
2023£55,417£54,995
2024£74,357£71,433

What it does

What

General Charitable PurposesThe Advancement Of Health Or Saving Of Lives

Who

Children/young PeopleElderly/old PeoplePeople With DisabilitiesOther Charities Or Voluntary Bodies

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Other FinanceProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE OBJECTS OF THE ANNABELLE ROSE FOUNDATION SHALL BE:(I) THE RELIEF OF PERSONS SUFFERING FROM SPINAL MUSCULAR ATROPHY AND RELATED CONDITIONS.(II) THE RELIEF IN CASES OF PSYCHOLOGICAL AND EMOTIONAL DISTRESS OF THE PARENTS AND GUARDIANS AND OTHER RELATIVES OF SUCH PERSONS OR OF SUCH PERSONS WHO ARE DECEASED.(III) THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF SPINAL MUSCULAR ATROPHY SUBJECT TO THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH

Governing document: CONSTITUTION ADOPTED 13 MAR 2010

Trustees (9)

9trustees
60median age
0aged 70+

Connected charities (1)

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