Noonan Syndrome Association

Registered charity 1140671 Registered since 2011

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

4.1y median 2y

average tenure

12y

longest tenure

trustees past 6 years

3.9y

average years in governance

10 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 10The Advancement Of Health Or Saving Of Lives 10

Gaps to watch

No commercial or business experience on the board
Narrow spread of causes across the board

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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.noonansyndrome.org.uk
Email	info@noonansyndrome.org.uk
Phone	07359 474430
Address	The Marshal Room, 23-25 Old Row, Whalley Road, Barrow, Clitheroe, Lancashire, BB7 9AZ

Finances

£48,067 latest income

Year	Income	Spending
2021	£66,296	£32,321
2022	£63,260	£39,070
2023	£59,898	£80,474
2024	£30,427	£48,332
2025	£48,067	£81,393

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With Disabilities

How

Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE RELIEF OF ALL PERSONS AFFECTED BY NOONAN SYNDROME BY ALL OR ANY OF THE FOLLOWING MEANS:-1) THE FACILITATION AND PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, DIAGNOSIS, TREATMENT AND RELIEF OF NOONAN SYNDROME WITH THE USEFUL RESULTS OF THE RESEARCH BEING DISSEMINATED FOR THE BENEFIT OF THE PUBLIC;2) THE PROVISION OF FACILITIES, FINANCIAL AID, ADVICE AND SUPPORT SERVICES FOR PERSONS SUFFERING FROM NOONAN SYNDROME, THEIR FAMILIES, DEPENDANTS AND CARERS, INCLUDING THE FAMILIES AND DEPENDANTS OF THOSE WHO HAVE DIED FROM NOONAN SYNDROME AND PREGNANT MOTHERS WHERE IT IS BELIEVED THAT THEIR CHILD IS IN DANGER OF BEING BORN WITH NOONAN SYNDROME; AND3) BY ADVANCING THE EDUCATION OF THE PUBLIC IN RELATION TO THE EFFECTS OF NOONAN SYNDROME BY COMMUNICATING REPORTS AND DISSEMINATING INFORMATION BY ANY MEANS OR MEDIA CONCERNING RESEARCH WORK AND STUDIES UNDERTAKEN BY OR ON BEHALF OF THE CHARITY.

Governing document: CONSTITUTION 07 JAN 2011 AS AMENDED 1 MARCH 2011 as amended on 27 Apr 2021

Trustees (10)

10trustees

0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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