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Registered charity · Lancashire

Noonan Syndrome Association

  • 10 trustees
  • Income £48k (2025)
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Official record Charity Commission · updated 27th September 2026 · Sources

Network

The large node is Noonan Syndrome Association. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales, Scotland, Northern Ireland
Website
www.noonansyndrome.org.uk (opens in a new tab)
Registered
2011

Income and spending

  • YearIncomeSpending
  • 2025£48k£81k
  • 2024£30k£48k
  • 2023£60k£80k
Earlier years
  • 2022£63k£39k
  • 2021£66k£32k

Income trend, 2021 to 2025.

Charitable objects

THE RELIEF OF ALL PERSONS AFFECTED BY NOONAN SYNDROME BY ALL OR ANY OF THE FOLLOWING MEANS:-1) THE FACILITATION AND PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, DIAGNOSIS, TREATMENT AND RELIEF OF NOONAN SYNDROME WITH THE USEFUL RESULTS OF THE RESEARCH BEING DISSEMINATED FOR THE BENEFIT OF THE PUBLIC;2) THE PROVISION OF FACILITIES, FINANCIAL AID, ADVICE AND SUPPORT SERVICES FOR PERSONS SUFFERING FROM NOONAN SYNDROME, THEIR FAMILIES, DEPENDANTS AND CARERS, INCLUDING THE FAMILIES AND DEPENDANTS OF THOSE WHO HAVE DIED FROM NOONAN SYNDROME AND PREGNANT MOTHERS WHERE IT IS BELIEVED THAT THEIR CHILD IS IN DANGER OF BEING BORN WITH NOONAN SYNDROME; AND3) BY ADVANCING THE EDUCATION OF THE PUBLIC IN RELATION TO THE EFFECTS OF NOONAN SYNDROME BY COMMUNICATING REPORTS AND DISSEMINATING INFORMATION BY ANY MEANS OR MEDIA CONCERNING RESEARCH WORK AND STUDIES UNDERTAKEN BY OR ON BEHALF OF THE CHARITY.

Grants received

1 grant · £10,000 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £10,000

Most recent

  • The National Lottery Community Fund £10,0002018-08-09
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

4.1y median 2y
average tenure
12y
longest tenure

Trustees past 6 years

4.1y
average years in governance

First-time vs portfolio trustees

First-time (10)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 10The Advancement Of Health Or Saving Of Lives 10

Gaps to watch

  • No commercial or business experience on the board
  • Narrow spread of causes across the board

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£48k latest income · spending exceeded income in 2024 and 2025

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1140671
Status
Registered
Governing document
CONSTITUTION 07 JAN 2011 AS AMENDED 1 MARCH 2011 as amended on 27 Apr 2021
Contact on the register
07359 474430 · info@noonansyndrome.org.uk
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data