The Governance RegisterEdition 2026 · Compiled 12th July 2026

Restless Legs Syndrome-UK/Ekbom Syndrome Association

Registered charity 1140744 Registered since 2011

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

7
trustees on the board
3.1y median 3y
average tenure
7y
longest tenure
1
trustees past 6 years
3.4y
average years in governance
6 vs 0 portfolio
first-time trustees
1
company-linked trustees

Sector coverage

Disability 7The Advancement Of Health Or Saving Of Lives 7Animals 1

Commercial experience

Education 2Arts and leisure 1Business services 1

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Related organisations

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Contact

Websitewww.rls-uk.org
Emaildebbie.membership.rlsuk@btinternet.com
Phone00000000000
AddressPO BOX BOX 11084, GRANTHAM, NG31 0LN

Finances

£23,427 latest income

YearIncomeSpending
2021£8,077£2,171
2022£10,057£5,208
2023£16,653£17,019
2024£21,622£19,852
2025£23,427£9,961

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

People With DisabilitiesThe General Public/mankind

How

Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE CHARITY'S OBJECTS ARE TO PROMOTE THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH OF PERSONS SUFFERING FROM RESTLESS LEGS/EKBOM SYNDROME, THEIR CARERS AND FAMILIES, FOR THE BENEFIT OF THE PUBLIC, PARTICULARLY BY NOT EXCLUSIVELY BY:1) PROVIDING RESPONSIBLE AND USEFUL INFORMATION AND SUPPORT ON THE ILLNESS AND RELATED AREAS;2) INCREASING AWARENESS OF THE CONDITION AND ITS EFFECTS WITHIN THE GENERAL PUBLIC AND AMONG THE MEDICAL PROFESSION;3) PROMOTING USEFUL RESEARCH INTO RESTLESS LEGS SYNDROME AND THE DISSEMINATION OF THE USEFUL RESULTS OF SUCH RESEARCH

Governing document: CONSTITUTION ADOPTED 30 AUGUST 2008 AS AMENDED 15 JANUARY 2011 as amended on 09 Oct 2021

Trustees (7)

7trustees
53median age
0aged 70+

Connected charities (1)

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