The Governance RegisterEdition 2026 · Compiled 12th July 2026

Ichthyosis Support Group

Registered charity 1142457 Registered since 2011

Operates: Throughout England And Wales, Ireland, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

9
trustees on the board
8.2y median 9y
average tenure
15y
longest tenure
5
trustees past 6 years
10.4y
average years in governance
9 vs 0 portfolio
first-time trustees
8
company-linked trustees

Sector coverage

Education/training 9General Charitable Purposes 9The Advancement Of Health Or Saving Of Lives 9

Commercial experience

Tech and media 8Professional services 1

Gaps to watch

  • Several long-serving trustees could step down together
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Related organisations

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Contact

Websitewww.ichthyosis.org.uk
Emailisg@ichthyosis.org.uk
Phone08003689621
Address12 Manor Fields, Alrewas, BURTON-ON-TRENT, Staffordshire, DE13 7DA

Finances

£98,494 latest income

YearIncomeSpending
2021£393,719£42,060
2022£68,948£77,921
2023£100,059£73,823
2024£91,618£124,341
2025£98,494£123,221

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeopleElderly/old PeoplePeople With DisabilitiesOther Charities Or Voluntary Bodies

How

Makes Grants To OrganisationsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchOther Charitable Activities

Charitable objects

3.1 TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERS OR ICHTHYOSIS AND NAY ASSOCIATED CONDITION IN THE UNITED KINGDOM AND THE REPUBLIC OF IRELAND THROUGH THE PROVISION OF FINANCIAL ASSISTANCE, SUPPORT, EDUCATION AND PRACTICAL ADVICE;3.2 TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC AND MEDICAL PROFESSION IN ALL AREAS RELATING TO ICHTHYOSIS AND ANY ASSOCIATED CONDITION, AND ITS IMPLICATION FOR THE FAMILY;3.3 TO PROMOTE RESEARCH INTO THE MANAGEMENT OF ICHTHYOSIS AND ANY ASSOCIATED CONDITION AND TO PUBLISH THE USEFUL RESULTS OF THAT RESEARCH, AND TO SUPPORT ORGANISATIONS WORLDWIDE PROMOTING RESEARCH INTO ICHTHYOSIS; AND3.4 SUCH OTHER PURPOSES AS ARE CHARITABLE ACCORDING TO THE LAWS OF ENGLAND AND WALES FOR THE BENEFIT OF THE PUBLIC.

Governing document: MEMORANDUM MEMORANDUM AND ARTICLES INCORPORATED 19/04/2011

Trustees (9)

9trustees
57median age
2aged 70+

Linked company (Companies House)

Ichthyosis Support Group · 07609904 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 19/04/2011

1 governing document(s) held from Companies House.

Connected charities (0)

No charities share a trustee (from current data).

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