Registered charity · Staffordshire
Ichthyosis Support Group
Ichthyosis Support Group is a registered charity (number 1142457) based in Staffordshire, governed by 9 trustees and chaired by Paul William Whitehouse since 2011. Latest income £98k (2025). Source: Charity Commission register, updated 4th October 2026.
Also known as ISG (Charity Commission)
- 9 trustees
- Income £98k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
- Paul William WhitehouseChair · since 2011
- Baljinder SohiTrustee · since 2023
- Kay HolbyTrustee · since 2024
- Lee James LancashireTrustee · since 2017
- Margaret AldwinTrustee · since 2011
- Mudassar UlhaqTrustee · since 2014
- Raymond James RowleyTrustee · since 2011
- Simon BrownTrustee · since 2025
- Tejvir SohiTrustee · since 2024
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Ireland, Scotland, Northern Ireland
- Website
- www.ichthyosis.org.uk (opens in a new tab)
- Linked company
- Ichthyosis Support Group
- Registered
- 2011
Income and spending
- YearIncomeSpending
- 2025£98k£123k
- 2024£92k£124k
- 2023£100k£74k
Earlier years
- 2022£69k£78k
- 2021£394k£42k
Income trend, 2021 to 2025.
Charitable objects
3.1 TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERS OR ICHTHYOSIS AND NAY ASSOCIATED CONDITION IN THE UNITED KINGDOM AND THE REPUBLIC OF IRELAND THROUGH THE PROVISION OF FINANCIAL ASSISTANCE, SUPPORT, EDUCATION AND PRACTICAL ADVICE;3.2 TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC AND MEDICAL PROFESSION IN ALL AREAS RELATING TO ICHTHYOSIS AND ANY ASSOCIATED CONDITION, AND ITS IMPLICATION FOR THE FAMILY;3.3 TO PROMOTE RESEARCH INTO THE MANAGEMENT OF ICHTHYOSIS AND ANY ASSOCIATED CONDITION AND TO PUBLISH THE USEFUL RESULTS OF THAT RESEARCH, AND TO SUPPORT ORGANISATIONS WORLDWIDE PROMOTING RESEARCH INTO ICHTHYOSIS; AND3.4 SUCH OTHER PURPOSES AS ARE CHARITABLE ACCORDING TO THE LAWS OF ENGLAND AND WALES FOR THE BENEFIT OF THE PUBLIC.
Grants received
2 grants · £10,650 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £9,650
- SHAREGIFT · £1,000
Most recent
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
9 trustees on the board
- Paul William Whitehouse Chair since 2011
- Baljinder Sohi since 2023
- Kay Holby since 2024
- Lee James Lancashire since 2017
- Margaret Aldwin since 2011
- Mudassar Ulhaq since 2014
- Raymond James Rowley since 2011
- Simon Brown since 2025
- Tejvir Sohi since 2024
Trustees past 6 years
- Paul William Whitehouse Chair since 2011
- Lee James Lancashire since 2017
- Margaret Aldwin since 2011
- Mudassar Ulhaq since 2014
- Raymond James Rowley since 2011
First-time vs portfolio trustees
First-time (9)
- Paul William Whitehouse Chair since 2011
- Baljinder Sohi since 2023
- Kay Holby since 2024
- Lee James Lancashire since 2017
- Margaret Aldwin since 2011
- Mudassar Ulhaq since 2014
- Raymond James Rowley since 2011
- Simon Brown since 2025
- Tejvir Sohi since 2024
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1142457
- Status
- Registered
- Governing document
- MEMORANDUM MEMORANDUM AND ARTICLES INCORPORATED 19/04/2011
- Companies House
- Company number 07609904 · Active
- Contact on the register
- 08003689621 · isg@ichthyosis.org.uk
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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