The Society for Mucopolysaccharide Diseases

Registered charity 1143472 Registered since 2011

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

8.2y median 7y

average tenure

15y

longest tenure

trustees past 6 years

15.4y

average years in governance

10 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 11Education/training 11The Advancement Of Health Or Saving Of Lives 11

Commercial experience

Professional services 10Health and social care 3Business services 1

Gaps to watch

Several long-serving trustees could step down together

Boards that share trustees

The Aadc Research Trust 1 shared trustee

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Related organisations

The Aadc Research Trust 1 shared trustee
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Freeways Trust Similar size; both Disability
Torfaen Citizens Advice Bureau Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.mpssociety.org.uk
Email	mps@mpssociety.org.uk
Phone	07867596494
Address	Mps House, Repton Place, White Lion Road, Amersham, HP7 9LP

Finances

£1,934,735 latest income

Year	Income	Spending
2020	£2,055,446	£1,513,142
2021	£1,443,246	£1,581,251
2022	£1,721,243	£2,010,927
2023	£1,812,981	£1,996,359
2024	£1,934,735	£1,862,072

What it does

What

Education/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

People With Disabilities

How

Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

1. THE RELIEF OF PERSONS SUFFERING FROM MUCOPOLYSACCHARIDE AND RELATED LYSOSOMAL DISEASES; AND2. TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF SUCH DISEASES AND RELATED PAEDIATRIC NEURODEGENERATIVE BRAIN DISEASES PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED.

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 02/08/2011AS AMENDED BY SPECIAL RESOLUTION(S) DATED 27/04/2012 as amended on 01 Dec 2018

Trustees (11)

11trustees

64median age

3aged 70+

David Maurice Pattonage 41 since 2017
Dr Fiona Jane Stewartage 65 since 2020
Dr Glenn Mckeeage 68 since 2024
Judith Evansage 75 since 2011
Katy Joanne Brownage 50 since 2020
Professor Bryan Winchesterage 84 since 2011
Professor Derralynn Arlene Hughesage 57 since 2022
Professor Simon James Robert Healesage 64 since 2022
Philip John Pearsonage 50 since 2019
Sarah Burgessage 45 since 2019
Wilma Robinsage 76 since 2011

Linked company (Companies House)

Society for Mucopolysaccharide Diseases · 07726882 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 02/08/2011

5 governing document(s) held from Companies House.

Connected charities (1)

The Aadc Research Trust 1 shared trustee

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