Registered charity · Amersham
The Society for Mucopolysaccharide Diseases
- 10 trustees
- Income £2.2m (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
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Who leads it
- David Maurice PattonTrustee · since 2017
- Dr Fiona Jane StewartTrustee · since 2020
- Dr Glenn MckeeTrustee · since 2024
- Judith EvansTrustee · since 2011
- Katy Joanne BrownTrustee · since 2020
- Philip John PearsonTrustee · since 2019
- Professor Bryan WinchesterTrustee · since 2011
- Professor Derralynn Arlene HughesTrustee · since 2022
- Professor Simon James Robert HealesTrustee · since 2022
- Wilma RobinsTrustee · since 2011
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales
- Website
- www.mpssociety.org.uk (opens in a new tab)
- Linked company
- Society for Mucopolysaccharide Diseases
- Registered
- 2011
Income and spending
- YearIncomeSpending
- 2025£2.2m£2.2m
- 2024£1.9m£1.9m
- 2023£1.8m£2.0m
Earlier years
- 2022£1.7m£2.0m
- 2021£1.4m£1.6m
Income trend, 2021 to 2025.
Charitable objects
1. THE RELIEF OF PERSONS SUFFERING FROM MUCOPOLYSACCHARIDE AND RELATED LYSOSOMAL DISEASES; AND2. TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF SUCH DISEASES AND RELATED PAEDIATRIC NEURODEGENERATIVE BRAIN DISEASES PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED.
Grants received
10 grants · £829,575 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £681,950 (6 grants)
- City Bridge Trust · £77,400
- Masonic Charitable Foundation · £62,725
- The James Tudor Foundation · £5,000
- SHAREGIFT · £2,500
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
10 trustees on the board
- David Maurice Patton since 2017
- Dr Fiona Jane Stewart since 2020
- Dr Glenn Mckee since 2024
- Judith Evans since 2011
- Katy Joanne Brown since 2020
- Professor Bryan Winchester since 2011
- Professor Derralynn Arlene Hughes since 2022
- Professor Simon James Robert Heales since 2022
- Philip John Pearson since 2019
- Wilma Robins since 2011
Trustees past 6 years
- David Maurice Patton since 2017
- Dr Fiona Jane Stewart since 2020
- Judith Evans since 2011
- Professor Bryan Winchester since 2011
- Philip John Pearson since 2019
- Wilma Robins since 2011
First-time vs portfolio trustees
First-time (9)
- David Maurice Patton since 2017
- Dr Fiona Jane Stewart since 2020
- Dr Glenn Mckee since 2024
- Judith Evans since 2011
- Katy Joanne Brown since 2020
- Professor Bryan Winchester since 2011
- Professor Derralynn Arlene Hughes since 2022
- Philip John Pearson since 2019
- Wilma Robins since 2011
Portfolio (1)
- Professor Simon James Robert Heales since 2022
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
4.8 months of spending held in free reserves · median for charities its size: 3.9 months · was 5.9 in 2020
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1143472
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES INCORPORATED 02/08/2011AS AMENDED BY SPECIAL RESOLUTION(S) DATED 27/04/2012 as amended on 01 Dec 2018
- Companies House
- Company number 07726882 · Active
- Contact on the register
- 07867596494 · mps@mpssociety.org.uk
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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