The Governance RegisterEdition 2026 · Compiled 6th September 2026

Idiopathic Intracranial Hypertension United Kingdom

Registered charity 1143522 Registered since 2011

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

5 trustees on the board

3.8y median 4y
average tenure
4y
longest tenure
0
trustees past 6 years
6y
average years in governance

First-time vs portfolio trustees

First-time (5)

1
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Education/training 5General Charitable Purposes 5The Advancement Of Health Or Saving Of Lives 5

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Education 1

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£19k latest income · spending exceeded income in 2024 and 2025

Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.

Also active in the same field

Deterministic, from public records.

Contact

Websitewww.iih.org.uk
EmailINFO@IIH.ORG.UK
Phone01914169998
Address19 Woburn, Washington, NE38 7JX

Finances

£19,470 latest income

YearIncomeSpending
2021£26,814£22,990
2022£35,455£23,296
2023£34,341£18,541
2024£17,119£47,033
2025£19,470£40,118

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeopleElderly/old PeoplePeople With DisabilitiesOther Charities Or Voluntary BodiesThe General Public/mankind

How

Provides Human ResourcesProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

1) TO PRESERVE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF IDIOPATHIC INTRACRANIAL HYPERTENSION (HEREINAFTER REFERRED TO AS "IIH") THROUGH THE PROVISION OF THE BEST POSSIBLE SUPPORT, EDUCATION AND PRACTICAL ADVICE.2) TO ADVANCE THE EDUCATION OF THE PUBLIC IN GENERAL, SUFFERERS AND THE MEDICAL COMMUNITY IN PARTICULAR ON THE SUBJECT OF IIH.3) TO PROMOTE AND SUPPORT RESEARCH FOR THE PUBLIC BENEFIT IN ALL ASPECTS OF THE CONDITION IIH AND TO PUBLISH THE USEFUL RESULTS.

Governing document: CONSTITUTION ADOPTED 23/07/2011AS AMENDED ON 19/08/2011AS AMENDED ON 21/06/2014

Trustees (5)

5trustees
47median age
0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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