Huntington's Disease Youth Organisation

Registered charity 1145781 Registered since 2012

Operates: Throughout England And Wales, Australia, Belgium, Brazil, Canada, Chile, Colombia, Denmark, France, Germany, Italy, New Zealand

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

4.6y median 6y

average tenure

longest tenure

trustees past 6 years

4.7y

average years in governance

8 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Other Charitable Purposes 8

Commercial experience

Other services 6

Gaps to watch

Several long-serving trustees could step down together
Narrow spread of causes across the board

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Crouch END & District U3A Similar size; both Other purposes

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.hdyo.org
Email	info@hdyo.org
Phone	07821799554
Address	28 Millais Close, BEDWORTH, CV12 8TH

Finances

£34,731 latest income

Year	Income	Spending
2020	£202,041	£205,853
2021	£104,120	£85,466
2022	£83,097	£75,809
2023	£77,639	£102,041
2024	£34,731	£35,018

What it does

What

Other Charitable Purposes

Who

Children/young PeoplePeople With Disabilities

How

Provides ServicesProvides Advocacy/advice/information

Charitable objects

TO RELIEVE THE NEED OF YOUNG PEOPLE IMPACTED BY HUNTINGTON'S DISEASE IN PARTICULARLY BUT NOT EXCLUSIVELY BY THE PROVISION OF INFORMATION AND SUPPORT.

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 25 OCT 2011AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 02/02/2012

Trustees (8)

8trustees

38median age

0aged 70+

Ashley Clarkeage 33 since 2021
Clare Braithwaiteage 54 since 2019
Corey Jankeage 61 since 2025
Dr Bonnie Hennig-Trestman since 2019
Dr Emily Leestmaage 38 since 2025
Dr Hayley Hubbersteyage 37 since 2019
Katherine Mcdonnell since 2024
Lauren Byrneage 34 since 2019

Linked company (Companies House)

Huntington's Disease Youth Organisation LTD · 07821651 · Active

PRI/LTD BY GUAR/NSC (Private, limited by guarantee, no share capital) · incorporated 25/10/2011

2 governing document(s) held from Companies House.

Connected charities (0)

No charities share a trustee (from current data).

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