Alpha-1 UK Support Group
Registered charity 1146330 Registered since 2012
Operates: Throughout England And Wales, Scotland
Connected trustee network
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How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Several long-serving trustees could step down together
Boards that share trustees
- Talaton Parish Hall 1 shared trustee
Related organisations iRelated organisationsBoards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
- Talaton Parish Hall 1 shared trustee
- Salv Health Trust Similar size; both Health
- Ramsey Local Hospital Charity Similar size; both Health
- Kawasaki Fund Similar size; both Health
- The Music Fund for Cuba Similar size; both Health
- Medina Ghosia Education Centre Similar size; both Health
Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.alpha1.org.uk |
| info@alpha1.org.uk | |
| Phone | 00 |
| Address | 27 OLD GLOUCESTER STREET, HOLBORN, LONDON, WC1N 3AX |
Finances
£24,757 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £10,464 | £3,252 |
| 2022 | £12,038 | £4,700 |
| 2023 | £19,356 | £3,092 |
| 2024 | £38,685 | £13,395 |
| 2025 | £24,757 | £5,985 |
What it does
What
Education/trainingThe Advancement Of Health Or Saving Of LivesWho
Children/young PeopleElderly/old PeoplePeople With DisabilitiesThe General Public/mankindHow
Makes Grants To IndividualsProvides ServicesProvides Advocacy/advice/informationCharitable objects
(1) TO RELIEVE THE NEEDS OF INDIVIDUALS SUFFERING FROM THE GENETIC CONDITION ALPHA-1 ANTITRYPSIN DEFICIENCY (AATD), THEIR FAMILIES, CARERS AND FRIENDS, IN PARTICULAR, BUT NOT EXCLUSIVELY BY:A) PROVIDING ADVICE, SUPPORT AND EQUIPMENT WITH A VIEW TO IMPROVE THE QUALITY OF LIFE OF THOSE SUFFERING WITH AATD, THEIR FAMILIES, CARERS AND FRIENDS;B) ADVANCING AWARENESS AND KNOWLEDGE OF AATD, IN PARTICULAR AMONG AFFECTED PATIENTS AND MEDICAL PROFESSIONS AND HEALTHCARE PROVIDER ORGANISATIONS;C) FOSTERING IMPROVEMENTS IN ACCESS AND EQUALITY OF ACCESS TO CLINICAL EXPERTISE AND OPTIMAL DISEASE MANAGEMENT AND TREATMENTS FOR AATD;D) SUPPORTING INITIATIVES AIMED AT DEVELOPMENT, INTRODUCTION AND WIDESPREAD ADOPTION OF NOVEL THERAPIES FOR AATD, INCLUDING RESEARCH.E) WORKING COLLABORATIVELY WITH OUR MEMBERS AND RELEVANT EXTERNAL INDIVIDUALS, GROUPS OF INDIVIDUALS, ORGANISATIONS AND INSTITUTIONS IN ORDER TO ACHIEVE A) - D).
Governing document: CONSTITUTION ADOPTED 16/02/2012 as amended on 24 Sep 2017
Trustees (4)
- Miss Karen O'Hara Chair since 2013
- DR Sandra Nestler-Parr since 2014
- Samantha Sharp since 2025
- Tanya Jones since 2018
Connected charities (1)
- Talaton Parish Hall 1 shared trustee
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