Registered charity · London
Alpha-1 UK Support Group
- 4 trustees
- Income £25k (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives
- Where
- Throughout England And Wales, Scotland
- Website
- www.alpha1.org.uk (opens in a new tab)
- Registered
- 2012
Income and spending
- YearIncomeSpending
- 2025£25k£6k
- 2024£39k£13k
- 2023£19k£3k
Earlier years
- 2022£12k£5k
- 2021£10k£3k
Income trend, 2021 to 2025.
Charitable objects
(1) TO RELIEVE THE NEEDS OF INDIVIDUALS SUFFERING FROM THE GENETIC CONDITION ALPHA-1 ANTITRYPSIN DEFICIENCY (AATD), THEIR FAMILIES, CARERS AND FRIENDS, IN PARTICULAR, BUT NOT EXCLUSIVELY BY:A) PROVIDING ADVICE, SUPPORT AND EQUIPMENT WITH A VIEW TO IMPROVE THE QUALITY OF LIFE OF THOSE SUFFERING WITH AATD, THEIR FAMILIES, CARERS AND FRIENDS;B) ADVANCING AWARENESS AND KNOWLEDGE OF AATD, IN PARTICULAR AMONG AFFECTED PATIENTS AND MEDICAL PROFESSIONS AND HEALTHCARE PROVIDER ORGANISATIONS;C) FOSTERING IMPROVEMENTS IN ACCESS AND EQUALITY OF ACCESS TO CLINICAL EXPERTISE AND OPTIMAL DISEASE MANAGEMENT AND TREATMENTS FOR AATD;D) SUPPORTING INITIATIVES AIMED AT DEVELOPMENT, INTRODUCTION AND WIDESPREAD ADOPTION OF NOVEL THERAPIES FOR AATD, INCLUDING RESEARCH.E) WORKING COLLABORATIVELY WITH OUR MEMBERS AND RELEVANT EXTERNAL INDIVIDUALS, GROUPS OF INDIVIDUALS, ORGANISATIONS AND INSTITUTIONS IN ORDER TO ACHIEVE A) - D).
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
4 trustees on the board
- Miss Karen O'Hara Chair since 2013
- DR Sandra Nestler-Parr since 2014
- Samantha Sharp since 2025
- Tanya Jones since 2018
Trustees past 6 years
- Miss Karen O'Hara Chair since 2013
- DR Sandra Nestler-Parr since 2014
- Tanya Jones since 2018
First-time vs portfolio trustees
First-time (3)
- Miss Karen O'Hara Chair since 2013
- DR Sandra Nestler-Parr since 2014
- Samantha Sharp since 2025
Portfolio (1)
- Tanya Jones since 2018
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1146330
- Status
- Registered
- Governing document
- CONSTITUTION ADOPTED 16/02/2012 as amended on 24 Sep 2017
- Contact on the register
- 00 · info@alpha1.org.uk
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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