Registered charity · Lancashire
Duchenne NOW
- 2 trustees
- Income £5k (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Australia, Ireland, United States, Scotland and more
- Website
- www.duchennenow.org (opens in a new tab)
- Linked company
- Duchenne NOW
- Registered
- 2012
Income and spending
- YearIncomeSpending
- 2025£5k£1k
- 2024£6k£104k
- 2023£5k£1k
Earlier years
- 2022£6k£3k
- 2021£7k£51k
Income trend, 2021 to 2025.
Charitable objects
TO PROMOTE RESEARCH INTO DUCHENNE AND BECKER MUSCULAR DYSTROPHY ; TO PROMOTE THE PROVISION OF BEST CARE AND TREATMENTS AND RELIEF TO THOSE AFFECTED BY DUCHENNE & BECKER MUSCULAR DYSTROPHY ; TO RAISE THE AWARENESS OF THE PUBLIC ON ANY MATTERS RELATING TO THE CHARITY'S OBJECTS THAT ARE CHARITABLE BY LAW.
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
2 trustees on the board
- Tony Levene since 2012
- Vici Richardson since 2012
Trustees past 6 years
- Tony Levene since 2012
- Vici Richardson since 2012
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
- Small board - little cover if a trustee leaves
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1146355
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES INCORPORATED 27 JAN 2012
- Companies House
- Company number 07926619 · Active
- Contact on the register
- 01706693399 · info@duchennenow.org
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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