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Registered charity · Sale

FOP Friends

  • 6 trustees
  • Income £143k (2024)
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Official record Charity Commission · updated 4th October 2026 · Sources

Network

The large node is FOP Friends. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

Do you help lead this organisation? Set up its network · How it works

About

What it does
The Advancement Of Health Or Saving Of Lives
Where
Throughout England And Wales, United States
Website
www.fopfriends.com (opens in a new tab)
Registered
2012

Income and spending

  • YearIncomeSpending
  • 2024£143k£183k
  • 2024£84k£58k
  • 2023£231k£141k
Earlier years
  • 2022£245k£163k
  • 2021£180k£136k

Income trend, 2021 to 2024.

Charitable objects

THE RELIEF OF DISTRESS AND SICKNESS FOR THOSE AFFECTED BY FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) A TRAGIC, DEGENERATIVE AND DEBILITATING CONDITION AND TO IMPROVE THE LIVES OF SUFFERERS AND THEIR FAMILIES.TO RAISE PUBLIC AWARENESS AND UNDERSTANDING OF FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) AND TO PROMOTE EDUCATION AND RESEARCH INTO THE STUDY AND CURE OF FOP AND RELATED CONDITIONS.TO SUPPORT CHARITIES AND ORGANISATIONS UNDERTAKING CHARITABLE ACTIVITIES IN BOTH THE UK AND ABROAD WHO FUND RESEARCH, PROVIDE HELP, SUPPORT, CARE AND TREATMENT FOR PEOPLE AFFECTED BY FOP AND RELATED CONDITIONS.TO SUPPORT ORGANISATIONS RESEARCHING TREATMENTS AND A CURE FOR FOP AND RELATED CONDITIONS.

Grants received

6 grants · £65,242 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £65,242 (6 grants)

Most recent

  • The National Lottery Community Fund £16,4142026-02-23
  • The National Lottery Community Fund £10,4002024-03-08
  • The National Lottery Community Fund £9,8502022-03-04
  • The National Lottery Community Fund £9,9812020-03-10
  • The National Lottery Community Fund £9,6252017-12-13
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

6 trustees on the board

11.3y median 13.5y
average tenure
14y
longest tenure

Trustees past 6 years

11.8y
average years in governance

First-time vs portfolio trustees

First-time (5)

Portfolio (1)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

The Advancement Of Health Or Saving Of Lives 6Disability 1General Charitable Purposes 1

Gaps to watch

  • No commercial or business experience on the board
  • Several long-serving trustees could step down together

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 4 years.
2021
2022
2023
2024
incomespending£143k latest income

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1147704
Status
Registered
Governing document
TRUST DEED DATED 01 MAR 2012
Contact on the register
01612820441 · info@fopfriends.com
Edition
Register edition compiled 4th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data