FOP Friends
Registered charity 1147704 Registered since 2012
Operates: Throughout England And Wales, United States
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How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.
Sector coverage
Gaps to watch
- No commercial or business experience on the board
- Several long-serving trustees could step down together
Boards that share trustees
- Manchester Round Table 1 shared trustee
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- Manchester Round Table 1 shared trustee
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.fopfriends.com |
| info@fopfriends.com | |
| Phone | 01612820441 |
| Address | 1 Cumberland Road, Sale, M33 3FR |
Finances
£142,840 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £179,763 | £136,207 |
| 2022 | £245,252 | £162,748 |
| 2023 | £231,413 | £141,357 |
| 2024 | £83,617 | £58,322 |
| 2024 | £142,840 | £182,893 |
What it does
What
The Advancement Of Health Or Saving Of LivesWho
Other Charities Or Voluntary BodiesOther Defined GroupsThe General Public/mankindHow
Provides Other FinanceSponsors Or Undertakes ResearchCharitable objects
THE RELIEF OF DISTRESS AND SICKNESS FOR THOSE AFFECTED BY FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) A TRAGIC, DEGENERATIVE AND DEBILITATING CONDITION AND TO IMPROVE THE LIVES OF SUFFERERS AND THEIR FAMILIES.TO RAISE PUBLIC AWARENESS AND UNDERSTANDING OF FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) AND TO PROMOTE EDUCATION AND RESEARCH INTO THE STUDY AND CURE OF FOP AND RELATED CONDITIONS.TO SUPPORT CHARITIES AND ORGANISATIONS UNDERTAKING CHARITABLE ACTIVITIES IN BOTH THE UK AND ABROAD WHO FUND RESEARCH, PROVIDE HELP, SUPPORT, CARE AND TREATMENT FOR PEOPLE AFFECTED BY FOP AND RELATED CONDITIONS.TO SUPPORT ORGANISATIONS RESEARCHING TREATMENTS AND A CURE FOR FOP AND RELATED CONDITIONS.
Governing document: TRUST DEED DATED 01 MAR 2012
Trustees (6)
- MR Chris Bedford-GAY Chair since 2012
- Alison Acosta Bedford since 2012
- Andrew Rankin since 2024
- Fiona White since 2013
- Helen Bedford-Gay since 2015
- Rachel Bedford since 2012
Connected charities (1)
- Manchester Round Table 1 shared trustee
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