The Nathan Massey Foundation
Registered charity 1150058 Registered since 2012
Operates: Throughout England And Wales
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Sector coverage
Gaps to watch
- Several long-serving trustees could step down together
- Small board - little cover if a trustee leaves
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| amber@msdraughting.co.uk | |
| Phone | 01527543080 |
| Address | 11 Poverty, Astwood Bank, REDDITCH, Worcestershire, B96 6DG |
Finances
£12,260 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £6,240 | £4,015 |
| 2022 | £9,630 | £9,898 |
| 2023 | £12,681 | £9,733 |
| 2024 | £12,260 | £15,741 |
| 2025 |
What it does
What
Education/trainingThe Advancement Of Health Or Saving Of LivesWho
Children/young PeoplePeople With DisabilitiesHow
Makes Grants To IndividualsMakes Grants To OrganisationsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
(1) TO RELIEVE THE NEEDS OF INDIVIDUALS WITH LESCH-NYHAN SYNDROME, THEIR FAMILIES AND CARERS IN PARTICULAR, BUT NOT EXCLUSIVELY, THROUGH (I) THE PROVISION AND FACILITATION OF SUPPORT, CARE AND TREATMENT, (II) EDUCATIONAL AND DEVELOPMENTAL TOOLS, AIDS AND EQUIPMENT (III) NETWORKING TO EXCHANGE EXPERIENCES AND KNOWLEDGE, AND (IV) RESPITE CARE.(2) TO EDUCATE THE PUBLIC ABOUT LESCH-NYHAN SYNDROME THROUGH, IN PARTICULAR, BUT NOT EXCLUSIVELY (I) FUNDING RESEARCH INTO LESCH-NYHAN SYNDROME, ITS DIAGNOSIS, ITS TREATMENT AND TO PROGRESS TOWARDS THE DEVELOPMENT OF A CURE (II) RAISING AWARENESS OF LESCH-NYHAN SYNDROME (III) CO-ORDINATING A CENTRAL DATABASE OF LESCH-NYHAN SYNDROME FAMILIES, EXPERIENCED PROFESSIONALS, MEDICINES, TREATMENTS AND SPECIALIST EQUIPMENT.
Governing document: TRUST DEED DATED 30/11/2012
Trustees (3)
- Kevin ROY Childs Chair since 2012
- Amber Louise Massey since 2012
- Marilyn Mary Chapman since 2012
Connected charities (0)
No charities share a trustee (from current data).
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