Wolfram Syndrome UK

Registered charity 1152445 CIO Registered since 2013

Operates: Throughout England And Wales, Ireland, Scotland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

10.4y median 13y

average tenure

13y

longest tenure

trustees past 6 years

11.3y

average years in governance

5 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Education/training 5General Charitable Purposes 5The Advancement Of Health Or Saving Of Lives 5

Commercial experience

Other services 1

Gaps to watch

Several long-serving trustees could step down together

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Related organisations

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Talitha Arts Similar size; both Other purposes
Power to Inspire Similar size; both Other purposes
Docklands Community Organisation Similar size; both Other purposes

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.wolframsyndrome.co.uk
Email	admin@wolframsyndrome.co.uk
Phone	01903211358
Address	9 Church Way, Worthing, BN13 1HD

Finances

£121,228 latest income

Year	Income	Spending
2021	£38,254	£46,082
2022	£43,157	£48,197
2023	£108,116	£64,911
2024	£136,399	£113,865
2025	£121,228	£139,723

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisabilityOther Charitable Purposes

Who

Children/young PeoplePeople With Disabilities

How

Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchOther Charitable Activities

Charitable objects

1)TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF WOLFRAM SYNDROME AND RELATED SYNDROMES AND THEIR FAMILIES THROUGH THE PROVISION OF SUPPORT,EDUCATION, FINANCIAL ASSISTANCE WHERE POSSIBLE AND PRACTICAL ADVICE.(2)TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC AS WELL AS THE MEDICAL PROFESSION IN ALL AREAS RELATING TO WOLFRAM SYNDROME AND RELATED SYNDROMES

Governing document: CIO - Foundation Registered 17 Jun 2013 as amended on 04 Feb 2020

Trustees (5)

5trustees

67median age

0aged 70+

John Isherwood Chair since 2019
Alan NYE since 2013
Abby Gardner since 2020
Paul Lynchage 67 since 2013
Prof TIM Barrett since 2013

Connected charities (0)

No charities share a trustee (from current data).

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