Skip to content
Governance Register
Sign inFind yourself
Find yourselfSign in
Search How it works For organisations For professionals

Edition

United Kingdom (current)IrelandUnited StatesNew ZealandCanadaAustraliaScotlandNorthern Ireland

Registered charity (CIO) · Worthing

Wolfram Syndrome UK

Also known as Wsuk (Charity Commission)

  • 5 trustees
  • Income £121k (2025)
How am I connected?
More
View network map Report an issue

Official record Charity Commission · updated 4th October 2026 · Sources

Network

The large node is Wolfram Syndrome UK. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

Do you help lead this organisation? Set up its network · How it works

Public contracts won

1 contract

From Contracts Finder and Find a Tender, the UK Government's public procurement notices, under the Open Government Licence v3.0. Matched to this organisation by company number, charity number or exact name and postcode; every figure links to its source notice.

  • WSUK Support to Children and YP Services Buyer: Birmingham Women's and Children's NHS Foundation Trust Value not published Date not published CPV 85100000 Source: Find a Tender

    PSR Direct Award A for the provision of support to BWC NHSFT with children’s and young people’s MDT clinic services for Wolfram Syndrome.

About

What it does
General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability and 1 more
Where
Throughout England And Wales, Ireland, Scotland
Website
www.wolframsyndrome.co.uk (opens in a new tab)
Registered
2013

Income and spending

  • YearIncomeSpending
  • 2025£121k£140k
  • 2024£136k£114k
  • 2023£108k£65k
Earlier years
  • 2022£43k£48k
  • 2021£38k£46k

Income trend, 2021 to 2025.

Income source mix, 2025: Government contracts 60%. From the charity's annual return.

Charitable objects

1)TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF WOLFRAM SYNDROME AND RELATED SYNDROMES AND THEIR FAMILIES THROUGH THE PROVISION OF SUPPORT,EDUCATION, FINANCIAL ASSISTANCE WHERE POSSIBLE AND PRACTICAL ADVICE.(2)TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC AS WELL AS THE MEDICAL PROFESSION IN ALL AREAS RELATING TO WOLFRAM SYNDROME AND RELATED SYNDROMES

Grants received

4 grants · £34,892 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £24,942 (3 grants)
  • Department for Digital, Culture, Media & Sport · £9,950

Most recent

  • The National Lottery Community Fund £9,9952021-12-22
  • Department for Digital, Culture, Media & Sport £9,9502020-06-19
  • The National Lottery Community Fund £9,9652019-10-16
  • The National Lottery Community Fund £4,9822014-11-05
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

5 trustees on the board

10.4y median 13y
average tenure
13y
longest tenure

Trustees past 6 years

11.5y
average years in governance

First-time vs portfolio trustees

First-time (5)

1
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Education/training 5General Charitable Purposes 5The Advancement Of Health Or Saving Of Lives 5

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Other services 1

Gaps to watch

  • Several long-serving trustees could step down together

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£121k latest income

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1152445
Status
Registered
Governing document
CIO - Foundation Registered 17 Jun 2013 as amended on 04 Feb 2020
Contact on the register
01903211358 · admin@wolframsyndrome.co.uk
Edition
Register edition compiled 4th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data