Leber's Hereditary Optic Neuropathy Society
Registered charity 1157206 CIO Registered since 2014
Operates: Ireland, Scotland, Northern Ireland, Isle Of Man
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Sector coverage
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- Small board - little cover if a trustee leaves
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | http://www.LHONSociety.org/ |
| Info@LHONSociety.org | |
| Phone | 01273011969 |
| Address | Community Base, 133 Queens Road, Brighton, East Sussex, BN1 3XG |
Finances
£2,265 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £1,108 | £123 |
| 2022 | £21,448 | £152 |
| 2023 | £4,247 | £13,827 |
| 2024 | £11,062 | £2,916 |
| 2025 | £2,265 | £15,724 |
What it does
What
The Advancement Of Health Or Saving Of LivesDisabilityWho
People With DisabilitiesHow
Makes Grants To OrganisationsProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
1. TO RELIEVE THE CHARITABLE NEEDS OF PEOPLE AFFECTED BY LEBER’S HEREDITARY OPTIC NEUROPATHY (“LHON)”, THEIR FAMILIES AND CARES BY THE PROVISION OF SUPPORT, ADVOCACY, ADVICE AND INFORMATION. 2. TO CARRY OUT, OR TO PROVIDE FUNDS TO SUPPORT RESEARCH IN ALL ASPECTS OF LHON, ITS CAUSES, TREATMENT AND CURE AND PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH.
Governing document: CIO - ASSOCIATION REGISTERED 28 MAY 2014AMENDED ON 07 JAN 2017
Trustees (3)
- Charlotte Isabella Mcmillan since 2021
- Diane Louise Watson since 2024
- Russell George Winston Wheeler since 2014
Connected charities (0)
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