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Registered charity (CIO) · East Sussex

Leber's Hereditary Optic Neuropathy Society

  • 3 trustees
  • Income £2k (2025)
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Official record Charity Commission · updated 4th October 2026 · Sources

Network

The large node is Leber's Hereditary Optic Neuropathy Society. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
The Advancement Of Health Or Saving Of Lives, Disability
Where
Ireland, Scotland, Northern Ireland, Isle Of Man
Website
www.LHONSociety.org (opens in a new tab)
Registered
2014

Income and spending

  • YearIncomeSpending
  • 2025£2k£16k
  • 2024£11k£3k
  • 2023£4k£14k
Earlier years
  • 2022£21k£152
  • 2021£1k£123

Income trend, 2021 to 2025.

Charitable objects

1. TO RELIEVE THE CHARITABLE NEEDS OF PEOPLE AFFECTED BY LEBER’S HEREDITARY OPTIC NEUROPATHY (“LHON)”, THEIR FAMILIES AND CARES BY THE PROVISION OF SUPPORT, ADVOCACY, ADVICE AND INFORMATION. 2. TO CARRY OUT, OR TO PROVIDE FUNDS TO SUPPORT RESEARCH IN ALL ASPECTS OF LHON, ITS CAUSES, TREATMENT AND CURE AND PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH.

Grants received

1 grant · £8,000 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £8,000

Most recent

  • The National Lottery Community Fund £8,0002022-01-21
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

3 trustees on the board

6.3y median 5y
average tenure
12y
longest tenure

Trustees past 6 years

6.6y
average years in governance

First-time vs portfolio trustees

First-time (3)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 3The Advancement Of Health Or Saving Of Lives 3

Gaps to watch

  • Small board - little cover if a trustee leaves

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£2k latest income

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1157206
Status
Registered
Governing document
CIO - ASSOCIATION REGISTERED 28 MAY 2014AMENDED ON 07 JAN 2017
Contact on the register
01273011969 · Info@LHONSociety.org
Edition
Register edition compiled 4th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data