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Registered charity (CIO) · London

Cure EB (Formerly Known AS Sohana Research Fund)

  • 7 trustees
  • Income £4.9m (2024)
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Official record Charity Commission · updated 27th September 2026 · Sources

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The large node is Cure EB (Formerly Known AS Sohana Research Fund). Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
The Advancement Of Health Or Saving Of Lives, Disability
Where
France, Spain, United States, Throughout England And Wales
Website
www.cure-eb.org (opens in a new tab)
Registered
2014

Income and spending

  • YearIncomeSpending
  • 2024£4.9m£1.4m
  • 2023£731k£1.6m
  • 2022£1.0m£1.1m
Earlier years
  • 2021£1.6m£859k
  • 2020£797k£760k

Income trend, 2020 to 2024.

Charitable objects

FOR THE PUBLIC BENEFIT, (A) THE ADVANCEMENT OF HEALTH AND (B) THE RELIEF AND ASSISTANCE OF PEOPLE IN NEED WHO ARE SUFFERING FROM EPIDERMOLYSIS BULLOSA, IN PARTICULAR BUT NOT EXCLUSIVELY BY MAKING GRANTS: (1) TO FUND MEDICAL RESEARCH AND/OR CLINICAL TRIALS ANYWHERE IN THE WORLD FOR THE PURPOSE OF DISCOVERING, DEVELOPING AND DELIVERING TREATMENTS FOR EPIDERMOLYSIS BULLOSA; AND (2) TO FUND THE TREATMENT OF PATIENTS WHO ARE SUFFERING FROM EPIDERMOLYSIS BULLOSA. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 OR SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008.

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

7 trustees on the board

10.4y median 12y
average tenure
12y
longest tenure

Trustees past 6 years

10.5y
average years in governance

First-time vs portfolio trustees

First-time (7)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 7The Advancement Of Health Or Saving Of Lives 7

Gaps to watch

  • No commercial or business experience on the board
  • Several long-serving trustees could step down together
  • Narrow spread of causes across the board

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2020
2021
2022
2023
2024
incomespending£4.9m latest income
ReservesiReserves12 x free reserves / annual expenditure, from the Part B annual return. The sector median is computed across all Part B filers in the same income band.

2.0 months of spending held in free reserves · median for charities its size: 3.9 months · was 28.8 in 2020

0
EmployeesiEmployeesHeadcount as filed in Part B annual returns, per financial year. Shown exactly as filed; year-on-year figures may be filed on different bases, so a comparison is only shown when the filings are plausibly comparable.

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1158672
Status
Registered
Governing document
CIO - FOUNDATION REGISTERED 25 SEP 2014AMENDED ON 20 MAR 2018AMENDED ON 21 MAR 2018
Contact on the register
02034058433 · contact@cure-eb.org
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data