Registered charity · Torquay
Alstrom Syndrome Europe
- 5 trustees
- Income £0 (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability, Recreation
- Where
- Austria, Belgium, Cyprus, Denmark and more
- Website
- www.alstrom.org.uk (opens in a new tab)
- Linked company
- Alstrom Syndrome Europe
- Registered
- 2015
Income and spending
- YearIncomeSpending
- 2025£0£0
- 2024£0£732
- 2023£0£732
Earlier years
- 2022£0£63
- 2021£0£645
Income trend, 2021 to 2025.
Charitable objects
TO RELIEVE SICKNESS AND TO PROMOTE AND PROTECT THE HEALTH OF PEOPLE AFFECTED BY ALSTRÖM SYNDROME FOR THE PUBLIC BENEFIT BY ADVANCING EDUCATION, RAISING AWARENES AND PROMOTING RESEARCH INTO ALSTRÖM SYNDROME.
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
5 trustees on the board
- DR Maffei Chair since 2014
- Bernd Rosenbichler since 2025
- Dr Tarekegn Geberhiwot since 2026
- Kerry Leeson-Beevers since 2024
- Professor Diana Valverde Perez since 2016
Trustees past 6 years
- DR Maffei Chair since 2014
- Professor Diana Valverde Perez since 2016
First-time vs portfolio trustees
First-time (4)
- DR Maffei Chair since 2014
- Bernd Rosenbichler since 2025
- Dr Tarekegn Geberhiwot since 2026
- Professor Diana Valverde Perez since 2016
Portfolio (1)
- Kerry Leeson-Beevers since 2024
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1160362
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES INCORPORATED 02 JUL 2014AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 29/12/2014
- Companies House
- Company number 09113143 · Active
- Contact on the register
- 07970071675 · catherine.lewis@alstrom.org.uk
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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