Registered charity · London
The Polycystic Kidney Disease Charity
- 10 trustees
- Income £348k (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
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Who leads it
- Adrian TinsleyTrustee · since 2018
- Alan GreenbergTrustee · since 2017
- Bulraj Singh JohalTrustee · since 2015
- Idriz AdedojaTrustee · since 2022
- Jonathan David ReesTrustee · since 2021
- Karen Sarah Mary StapletonTrustee · since 2019
- Professor Patricia WilsonTrustee · since 2018
- Rebecca Murphy-PeersTrustee · since 2015
- Victoria Lise CalaisTrustee · since 2026
- Zahra Imaan SeyyadTrustee · since 2026
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.pkdcharity.org.uk (opens in a new tab)
- Linked company
- Polycystic Kidney Disease Charity
- Registered
- 2015
Income and spending
- YearIncomeSpending
- 2025£348k£377k
- 2024£454k£332k
- 2023£386k£509k
Earlier years
- 2022£348k£324k
- 2021£362k£268k
Income trend, 2021 to 2025.
Charitable objects
TO PROMOTE HEALTH AND TO RELIEVE THOSE PERSONS SUFFERING FROM OR AFFECTED BY POLYCYSTIC KIDNEY DISEASE (PKD) WITH A VIEW TO IMPROVING THEIR CONDITIONS OF LIFE, IN PARTICULAR BUT NOT EXCLUSIVELY BY: •FUNDING RESEARCH INTO DETERMINING THE CAUSES OF PKD AND INTO DISCOVERING TREATMENTS AND A CURE, WITH ANY USEFUL RESULTS OF SUCH RESEARCH BEING AVAILABLE TO THE PUBLIC.•PROMOTING AWARENESS OF PKD THROUGH THE PRODUCTION AND PUBLICATION OF AUTHORITATIVE INFORMATION FOR THE GENERAL PUBLIC AND HEALTH PROFESSIONALS ABOUT THE MEDICAL, HEALTHCARE AND RELATED ASPECTS OF PKD.•ORGANISING PATIENT, FAMILY AND CARER INFORMATION, EDUCATION AND SUPPORT EVENTS ACROSS THE UK AND OFFERING PERSONAL SUPPORT TO PATIENTS AND THEIR FAMILIES.
Grants received
6 grants · £376,692 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £356,505 (2 grants)
- Garfield Weston Foundation · £10,000
- The James Tudor Foundation · £5,020
- Halifax Foundation for Northern Ireland · £2,667
- SHAREGIFT · £2,500
Most recent
- The National Lottery Community Fund
- Halifax Foundation for Northern Ireland
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
10 trustees on the board
- Alan Greenberg since 2017
- Adrian Tinsley since 2018
- Bulraj Singh Johal since 2015
- Idriz Adedoja since 2022
- Jonathan David Rees since 2021
- Karen Sarah Mary Stapleton since 2019
- Professor Patricia Wilson since 2018
- Rebecca Murphy-Peers since 2015
- Victoria Lise Calais since 2026
- Zahra Imaan Seyyad since 2026
Trustees past 6 years
- Alan Greenberg since 2017
- Adrian Tinsley since 2018
- Bulraj Singh Johal since 2015
- Karen Sarah Mary Stapleton since 2019
- Professor Patricia Wilson since 2018
- Rebecca Murphy-Peers since 2015
First-time vs portfolio trustees
First-time (9)
- Alan Greenberg since 2017
- Adrian Tinsley since 2018
- Bulraj Singh Johal since 2015
- Jonathan David Rees since 2021
- Karen Sarah Mary Stapleton since 2019
- Professor Patricia Wilson since 2018
- Rebecca Murphy-Peers since 2015
- Victoria Lise Calais since 2026
- Zahra Imaan Seyyad since 2026
Portfolio (1)
- Idriz Adedoja since 2022
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1160970
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES INCORPORATED 12/03/2015
- Companies House
- Company number 09486245 · Active
- Contact on the register
- 02073870543 · info@pkdcharity.org.uk
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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