Cystic Fibrosis Care
Registered charity 1162445 CIO Registered since 2015
Operates: Throughout England And Wales
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Sector coverage
Commercial experience
Gaps to watch
- Several long-serving trustees could step down together
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- The Jennifer Jane Sunley Charitable Settlement 1 shared trustee
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Contact
| Website | www.cysticfibrosiscare.org.uk |
| pat.kilpatrick@cysticfibrosiscare.org.uk | |
| Phone | 07857 508900 |
| Address | Westgarth, Snape, BEDALE, DL8 2TJ |
Finances
£230,043 latest income
| Year | Income | Spending |
|---|---|---|
| 2020 | £69,915 | £64,125 |
| 2021 | £164,923 | £50,436 |
| 2022 | £121,436 | £78,227 |
| 2023 | £177,420 | £144,226 |
| 2024 | £230,043 | £202,635 |
What it does
What
General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisabilityThe Prevention Or Relief Of PovertyOther Charitable PurposesWho
Children/young PeoplePeople With DisabilitiesOther Charities Or Voluntary BodiesHow
Makes Grants To IndividualsMakes Grants To OrganisationsProvides Advocacy/advice/informationOther Charitable ActivitiesCharitable objects
FOR THE PUBLIC BENEFIT THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH OF SUFFERERS OF CYSTIC FIBROSIS AND THEIR FAMILIES BY PROVIDING:- FACE-TO-FACE, CONFIDENTIAL SERVICES THAT INCLUDE:- EMOTIONAL SUPPORT AND COUNSELLING AT TIMES OF ACUTE STRESS OR DISTRESS;- PRACTICAL HELP THAT INCLUDES ASSISTANCE WITH OFFICIAL FORMS AND HELP TO NEGOTIATE SOMETIMES COMPLEX PROCESSES AND OFFICIAL SYSTEMS;- ADVOCACY AND REPRESENTATION IN RELATION TO HOUSING, EDUCATION, EMPLOYMENT AND AT DISABILITY APPEALS TRIBUNALS;- FINANCIAL ASSISTANCE FOR ESSENTIAL ITEMS THAT ENABLE OPTIMUM HOME SUPPORT OR RESPITE BREAKS;- TRANSPORT TO HOSPITAL APPOINTMENTS;- BEFRIENDING AND MENTORING FOR YOUNG PEOPLE WITH CYSTIC FIBROSIS;- AND MASSAGE THERAPY IN HOSPITAL FOR ADULTS WITH CYSTIC FIBROSIS.
Governing document: CIO - Foundation Registered 29 Jun 2015
Trustees (4)
- Christy York Chair since 2015
- Catherine Jean Sunleyage 62 since 2015
- Martyn Rose since 2015
- Sasha York since 2015
Connected charities (1)
- The Jennifer Jane Sunley Charitable Settlement 1 shared trustee
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