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Registered charity (CIO) · Wantage

Sudep Action

  • 8 trustees
  • Income £518k (2025)
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Official record Charity Commission · updated 27th September 2026 · Sources

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Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
The Advancement Of Health Or Saving Of Lives, Other Charitable Purposes
Where
Throughout England And Wales, Scotland
Website
www.sudep.org (opens in a new tab)
Registered
2015

Income and spending

  • YearIncomeSpending
  • 2025£518k£696k
  • 2024£634k£513k
  • 2023£506k£413k
Earlier years
  • 2022£387k£447k
  • 2021£501k£426k

Income trend, 2021 to 2025.

Charitable objects

THE PROMOTION OF ANY CHARITABLE PURPOSE DIRECTED TO SUPPORTING AND ALLEVIATING THE MENTAL AND PHYSICAL DISTRESS OF THOSE WHO ARE BEREAVED FOLLOWING THE DEATH OF SOMEONE WITH EPILEPSY INCLUDING RESEARCH, EDUCATION AND INFLUENCING CHANGE TO IMPROVE THE TREATMENT OF BEREAVED FAMILIES.THE PROMOTION OF ANY CHARITABLE PURPOSE TO IMPROVE UNDERSTANDING AND COMMUNICATION TO PEOPLE WITH EPILEPSY, THEIR FAMILIES, PROFESSIONALS, POLICY-MAKERS AND OTHER INTERESTED PARTIES CONCERNING PREVENTION OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP) AND ALL EPILEPSY-RELATED DEATHS INCLUDING RESEARCH, EDUCATION AND INFLUENCING CHANGE TO IMPROVE THE TREATMENT OF EPILEPSY, RECOGNITION AND MANAGEMENT OF RISKS AND, IN DUE COURSE, TO MINIMISE THE OCCURRENCE OF SUCH DEATHS.

Grants received

8 grants · £175,341 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

Most recent

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

8 trustees on the board

4.5y median 3.5y
average tenure
9y
longest tenure

Trustees past 6 years

5.7y
average years in governance

First-time vs portfolio trustees

First-time (6)

Portfolio (2)

1
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Other Charitable Purposes 8The Advancement Of Health Or Saving Of Lives 8Education/training 2

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Professional services 1

Gaps to watch

  • Several long-serving trustees could step down together

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£518k latest income
ReservesiReserves12 x free reserves / annual expenditure, from the Part B annual return. The sector median is computed across all Part B filers in the same income band.

4.8 months of spending held in free reserves · median for charities its size: 4.0 months · was 10.0 in 2021

10 from 10 in 2021
EmployeesiEmployeesHeadcount as filed in Part B annual returns, per financial year. Shown exactly as filed; year-on-year figures may be filed on different bases, so a comparison is only shown when the filings are plausibly comparable.

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1164250
Status
Registered
Governing document
CIO - Foundation Registered 04 Nov 2015
Contact on the register
01235772850 · info@sudep.org
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

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