Sudep Action
Registered charity 1164250 CIO Registered since 2015
Operates: Throughout England And Wales, Scotland
Connected trustee network
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How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
10 trustees on the board
- Dr John Raymond Hirst Chair since 2017
- Alexandra Eleanor Stirling since 2017
- David James Raywood Sibree since 2020
- Dr Judith Mary Shakespeare since 2019
- Dr Rhys Thomas since 2025
- Dr William Owen Pickrell since 2025
- Paul Warren since 2026
- Professor Josemir W Sander since 2025
- Rachel Shah since 2017
- Simon Lees since 2017
Trustees past 6 years
- Dr John Raymond Hirst Chair since 2017
- Alexandra Eleanor Stirling since 2017
- David James Raywood Sibree since 2020
- Dr Judith Mary Shakespeare since 2019
- Rachel Shah since 2017
- Simon Lees since 2017
First-time vs portfolio trustees
First-time (7)
- Dr John Raymond Hirst Chair since 2017
- Alexandra Eleanor Stirling since 2017
- David James Raywood Sibree since 2020
- Paul Warren since 2026
- Professor Josemir W Sander since 2025
- Rachel Shah since 2017
- Simon Lees since 2017
Portfolio (3)
- Dr Judith Mary Shakespeare since 2019
- Dr Rhys Thomas since 2025
- Dr William Owen Pickrell since 2025
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
4.8 months of spending held in free reserves · median for charities its size: 4.0 months · was 10.0 in 2021
Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.
Related organisations
- International League Against Epilepsy (British Branch) 2 shared trustees
Connected through a shared trustee
- The Lady Nuffield Home 1 shared trustee
Also active in the same field
- The Beacon Church Camberley Similar size; both Other purposes
- Langworthy Cornerstone Association LTD Similar size; both Other purposes
- Mistley Kids Club LTD Similar size; both Other purposes
- Transformation CPR Similar size; both Other purposes
Deterministic, from public records.
Contact
| Website | www.sudep.org |
| info@sudep.org | |
| Phone | 01235772850 |
| Address | SUDEP ACTION, 18 Newbury Street, WANTAGE, OX12 8DA |
Finances
£517,612 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £501,183 | £425,524 |
| 2022 | £386,724 | £447,165 |
| 2023 | £505,663 | £413,153 |
| 2024 | £634,046 | £513,094 |
| 2025 | £517,612 | £695,986 |
What it does
What
The Advancement Of Health Or Saving Of LivesOther Charitable PurposesWho
Other Defined GroupsHow
Makes Grants To OrganisationsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
THE PROMOTION OF ANY CHARITABLE PURPOSE DIRECTED TO SUPPORTING AND ALLEVIATING THE MENTAL AND PHYSICAL DISTRESS OF THOSE WHO ARE BEREAVED FOLLOWING THE DEATH OF SOMEONE WITH EPILEPSY INCLUDING RESEARCH, EDUCATION AND INFLUENCING CHANGE TO IMPROVE THE TREATMENT OF BEREAVED FAMILIES.THE PROMOTION OF ANY CHARITABLE PURPOSE TO IMPROVE UNDERSTANDING AND COMMUNICATION TO PEOPLE WITH EPILEPSY, THEIR FAMILIES, PROFESSIONALS, POLICY-MAKERS AND OTHER INTERESTED PARTIES CONCERNING PREVENTION OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP) AND ALL EPILEPSY-RELATED DEATHS INCLUDING RESEARCH, EDUCATION AND INFLUENCING CHANGE TO IMPROVE THE TREATMENT OF EPILEPSY, RECOGNITION AND MANAGEMENT OF RISKS AND, IN DUE COURSE, TO MINIMISE THE OCCURRENCE OF SUCH DEATHS.
Governing document: CIO - Foundation Registered 04 Nov 2015
Trustees (10)
- Dr John Raymond Hirstage band 70-74 Chair since 2017
- Alexandra Eleanor Stirling since 2017
- David James Raywood Sibree since 2020
- Dr Judith Mary Shakespeareage band 70-74 since 2019
- Dr Rhys Thomas since 2025
- Dr William Owen Pickrell since 2025
- Paul Warren since 2026
- Professor Josemir W Sander since 2025
- Rachel Shah since 2017
- Simon Lees since 2017
Connected charities (2)
- International League Against Epilepsy (British Branch) 2 shared trustees
- The Lady Nuffield Home 1 shared trustee
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