Shwachman Diamond Syndrome UK
Registered charity 1164269 CIO Registered since 2015
Operates: Throughout England And Wales
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How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
Gaps to watch
- Small board - little cover if a trustee leaves
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | http://www.sdsuk.org |
| Sds@sdsuk.org | |
| Phone | 07949036041 |
| Address | 5 LINCOLN ROAD, WASHINGBOROUGH, LINCOLN, LN4 1EQ |
Finances
£54,760 latest income
| Year | Income | Spending |
|---|---|---|
| 2020 | £10,645 | £2,065 |
| 2021 | £28,969 | £15,401 |
| 2022 | £8,294 | £0 |
| 2023 | £61,691 | £11,804 |
| 2024 | £54,760 | £65,637 |
What it does
What
General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisabilityWho
Children/young PeoplePeople With DisabilitiesHow
Makes Grants To IndividualsMakes Grants To OrganisationsProvides Human ResourcesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
TO PROVIDE RELIEF TO PATIENTS AND FAMILIES IN THE UK (INCLUDING SCOTLAND AND NORTHERN IRELAND) WHO ARE AFFECTED BY SHWACHMAN-DIAMOND SYNDROME (SDS) IN PARTICULAR BUT NOT EXCLUSIVELY BY:? PROMOTING ACCESS TO HEALTH AND EDUCATIONAL SERVICES FOR AFFECTED PATIENTS THROUGHOUT THE UK,? SUPPORTING RESEARCH INTO THE PATHOPHYSIOLOGY OF SDS AND ITS CURRENT AND POTENTIAL TREATMENT AND THE PUBLIC DISSEMINATION OF THE USEFUL RESULTS THEREOF, AND? PROVIDING AND ENCOURAGING OTHERS TO PROVIDE EDUCATIONAL RESOURCES AND ACTIVITIES ABOUT SDS FOR THE BENEFIT OF FAMILIES, PROFESSIONALS AND THE PUBLIC, BOTH NATIONALLY AND INTERNATIONALLY.
Governing document: CIO - Foundation Registered 05 Nov 2015 as amended on 09 Nov 2025
Trustees (3)
- Andrew Olding Chair since 2026
- Kapil Gotecha since 2019
- Rebecca Cuffe since 2025
Connected charities (0)
No charities share a trustee (from current data).
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