The Governance RegisterEdition 2026 · Compiled 12th July 2026

United Kingdom Primary Immunodeficiency Network

Registered charity 1164466 Registered since 2015

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

4
trustees on the board
4y median 4y
average tenure
4y
longest tenure
0
trustees past 6 years
15y
average years in governance
3 vs 1 portfolio
first-time trustees
4
company-linked trustees

Sector coverage

Education/training 4The Advancement Of Health Or Saving Of Lives 4General Charitable Purposes 1

Commercial experience

Other services 8Health and social care 4Professional services 2

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Related organisations

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Contact

Websitehttp://ukpin.org.uk/
Emailinfo@ukpin.org.uk
Phone02030195901
Address9 Appold Street, London, EC2A 2AP

Finances

£0 latest income

YearIncomeSpending
2021£221,000£179,000
2022£55,000£227,000
2023£0£179,958
2024£0£1,048
2025£0£125

What it does

What

Education/trainingThe Advancement Of Health Or Saving Of Lives

Who

The General Public/mankind

How

Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchActs As An Umbrella Or Resource Body

Charitable objects

The Objects of the Charity are, for the public benefit: • The advancement of health in particular among those with primary immunodeficiency disorders (“PID”) and related disorders and in particular but without limitation by: o Developing best-practice approaches to diagnosis and management of PID and related disorders; o Developing clinical guidelines by means of setting consensus standards based upon agreed UK best practice; o Establishing and maintaining a national patients registry; and • The advancement of education in PID and related subjects including disorders of innate and antigen-specific immunity, in particular but without limitation by promoting improved understanding of PID and related disorders among healthcare professionals, students and the public. • The support and advancement of clinical immunology through education, research, and clinical practice for the benefit of healthcare professionals, the public and patients. This provision may be amended by special resolution but only with the prior written consent of the Commission.

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 21 OCT 2014 as amended on 01 Nov 2022 as amended on 20 Dec 2022

Trustees (4)

4trustees
55median age
0aged 70+

Linked company (Companies House)

United Kingdom Primary Immunodeficiency Network · 09273983 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 21/10/2014

6 governing document(s) held from Companies House.

Connected charities (2)

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