Hope for Hypothalamic Hamartomas UK

Registered charity 1164565 Registered since 2015

Operates: Throughout England

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

8.7y median 11y

average tenure

11y

longest tenure

trustees past 6 years

16.2y

average years in governance

3 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Education/training 3General Charitable Purposes 3The Advancement Of Health Or Saving Of Lives 3

Commercial experience

Education 1Professional services 1

Gaps to watch

Several long-serving trustees could step down together
Small board - little cover if a trustee leaves

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Mattishall and Lenwade Surgeries Equipment Fund Similar size; both Disability
The Phanendra Chunduri Memorial Trust Similar size; both Disability
Preston Social Support Group for Deafened People Similar size; both Disability
Kitrinos Healthcare Similar size; both Disability
Wanjawulo Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.hopeforhh.org
Email	infouk@hopeforhh.org
Phone	07817 063243
Address	1 Leverett Grove, Back Lane, Tibberton, TF10 8PX

Finances

£212 latest income

Year	Income	Spending
2021	£268	£46
2022	£10	£5,551
2023	£137,769	£11,037
2024	£1,670	£17,070
2025	£212	£20,327

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With Disabilities

How

Provides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE RELIEF OF PERSONS SUFFERING FROM HYPOTHALAMIC HAMARTOMAS BY* INCREASING AWARENESS ABOUT HYPOTHALAMIC HAMARTOMAS WITHIN THE MEDICAL PROFESSION.* RAISING AWARENESS OF THE SYMPTOMS, EFFECTS AND TREATMENTS.* PROMOTING RESEARCH INTO EARLY DIAGNOSIS AND TREATMENT AND DISSEMINATING THE USEFUL RESULTS THEREOF.* THE PROVISION OF INFORMATION AND SUPPORT TO SUFFERERS AND CARE-GIVERS.

Governing document: TRUST DEED DATED 10/11/2015

Trustees (3)

3trustees

79median age

1aged 70+

Carrie Fulcher since 2015
Clive Gilbert Nottage 79 since 2022
Emma Nott MA Cantab since 2015

Connected charities (0)

No charities share a trustee (from current data).

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