Registered charity (CIO) · East Sussex
Childhood Tumour Trust
Childhood Tumour Trust is a registered charity (number 1165777) based in East Sussex, governed by 7 trustees. Latest income £186k (2025). Source: Charity Commission register, updated 4th October 2026.
Also known as CTT (Charity Commission)
- 7 trustees
- Income £186k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.
About
- What it does
- Other Charitable Purposes
- Where
- Throughout England And Wales, Northern Ireland, Scotland
- Website
- WWW.CHILDHOODTUMOURTRUST.ORG.UK (opens in a new tab)
- Registered
- 2016
Income and spending
- YearIncomeSpending
- 2025£186k£171k
- 2024£199k£167k
- 2023£109k£185k
Earlier years
- 2022£150k£96k
- 2021£70k£54k
Income trend, 2021 to 2025.
Charitable objects
THE OBJECTS OF THE CIO ARE TO RELIEVE THE NEEDS OF YOUNG PEOPLE UP TO THE AGE OF 24 WITH NEUROFIBROMATOSIS (NF1) AND THEIR FAMILIES IN PARTICULAR BUT NOT EXCLUSIVELY BY:- FUNDING AND ORGANISING SOCIAL EVENTS AND ACTIVITIES FOR THEIR BENEFIT/THAT RELIEVE THEIR NEEDS AND BY PROVIDING OPPORTUNITIES TO MEET UP WITH OTHERS WITH NF1;- RAISING MONEY FOR, HELP FUND AND ORGANISE HOLIDAY CAMPS FOR YOUNG PEOPLE WITH NF1;- SIGNPOSTING AND LINKING PEOPLE TO THE BEST INFORMATION/RESOURCES AVAILABLE FOR NF1;- RAISING AWARENESS OF NF1 THROUGH CAMPAIGNING, WORKING ALONGSIDE OTHER ORGANISATIONS, THE NHS AND RESEARCHERS TO IMPROVE BOTH DIAGNOSIS AND BETTER CARE OF FOR PEOPLE WITH NF1;- FUNDING PEER-REVIEWED RESEARCH INTO NF1 WHERE THE USEFUL RESULTS OF WHICH ARE MADE AVAILABLE FOR THE PUBLIC BENEFIT.
Grants received
5 grants · £63,929 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £58,729 (4 grants)
- The Clothworkers Foundation · £5,200
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
7 trustees on the board
- Daniel Coleman since 2022
- Kirsten Samuel-Hubert since 2023
- Martin Luke Pomfret since 2016
- Melanie Jarra since 2023
- Michael Chiocci since 2026
- Rebecca Hargreaves since 2026
- Shaylyn D'Arcy since 2025
Trustees past 6 years
- Martin Luke Pomfret since 2016
First-time vs portfolio trustees
First-time (7)
- Daniel Coleman since 2022
- Kirsten Samuel-Hubert since 2023
- Martin Luke Pomfret since 2016
- Melanie Jarra since 2023
- Michael Chiocci since 2026
- Rebecca Hargreaves since 2026
- Shaylyn D'Arcy since 2025
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Narrow spread of causes across the board
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1165777
- Status
- Registered
- Governing document
- CIO - Foundation Registered 26 Feb 2016 as amended on 09 Dec 2024
- Contact on the register
- 07943239019 · INFO@CHILDHOODTUMOURTRUST.ORG.UK
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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