The Governance RegisterEdition 2026 · Compiled 12th July 2026

Action FCS

Registered charity 1165873 CIO Registered since 2016

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

5
trustees on the board
6.6y median 8y
average tenure
10y
longest tenure
3
trustees past 6 years
11.5y
average years in governance
5 vs 0 portfolio
first-time trustees
1
company-linked trustees

Sector coverage

The Advancement Of Health Or Saving Of Lives 5

Commercial experience

Health and social care 1

Gaps to watch

  • Several long-serving trustees could step down together
  • Narrow spread of causes across the board
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Related organisations

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Websitewww.actionfcs.org
Emailinfo@actionfcs.org
Phone07920715366
Address36 GASKELL STREET, LONDON, SW4 6NS

Finances

£200 latest income

YearIncomeSpending
2020£2,963£2,150
2021£1,857£3,700
2022£281£398
2023£339£787
2024£200£415

What it does

What

The Advancement Of Health Or Saving Of Lives

Who

Other Defined Groups

How

Provides Advocacy/advice/information

Charitable objects

THE OBJECTS OF THE CIO ARE TO RELIEVE SICKNESS AND PRESERVE AND PROTECT GOOD HEALTHOF PERSONS SUFFERING FROM FAMILIAL LIPOPROTEIN LIPASE DEFICIENCY (LPLD) AND RELATEDCONDITIONS BY:1. RAISING AWARENESS OF LPLD AND RELATED CONDITIONS;2. EDUCATING PATIENTS, MEDICAL PERSONNEL AND THE PUBLIC IN GENERAL ABOUT LPLD;3. SUPPORTING PEOPLE WITH LPLD AND THOSE AFFECTED BY IT TO LIVE A FULL, HEALTHY ANDINTEGRATED LIFE;4. ADVOCATING FOR ACCESS TO EXCELLENT CARE AND NEW MEDICINES FOR ALL PATIENTS WITHLPLD.NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIOFOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THECHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIESACT (NORTHERN IRELAND) 2008.

Governing document: CIO - FOUNDATION REGISTERED 04 MAR 2016AMENDED ON 17 OCT 2017 as amended on 03 Sep 2020

Trustees (5)

5trustees
62median age
0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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