Cambridge Rare Disease Network
Registered charity 1166365 CIO Registered since 2016
Operates: Throughout England And Wales
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How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
Gaps to watch
- No commercial or business experience on the board
- Mostly recent joiners - limited long-term continuity
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.camraredisease.org |
| info@camraredisease.org | |
| Phone | 07725039780 |
| Address | B C S, 5 Station Court, Station Road, Great Shelford, CAMBRIDGE, CB22 5NE |
Finances
£181,873 latest income
| Year | Income | Spending |
|---|---|---|
| 2020 | £163,000 | £164,000 |
| 2021 | £163,501 | £103,210 |
| 2022 | £141,001 | £123,309 |
| 2023 | £223,867 | £191,845 |
| 2024 | £181,873 | £231,715 |
What it does
What
Education/trainingThe Advancement Of Health Or Saving Of LivesDisabilityWho
Children/young PeoplePeople With DisabilitiesOther Charities Or Voluntary BodiesThe General Public/mankindHow
Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchActs As An Umbrella Or Resource BodyCharitable objects
1) THE RELIEF OF SICKNESS OF PERSONS WITH RARE DISEASES, IN PARTICULAR BUT NOT EXCLUSIVELY BY THE PROVISION OF SUPPORT, ADVICE AND INFORMATION FOR SUCH PERSONS THEIR FAMILIES, CARERS AND THOSE WORKING WITH AFFECTED INDIVIDUALS.2)TO ADVANCE THE EDUCATION OF THE PUBLIC IN GENERAL ON THE SUBJECT OF RARE DISEASES AND RELATED SYNDROMES AND TO PROMOTE RESEARCH FOR THE PUBLIC BENEFIT IN ALL ASPECTS OF THAT SUBJECT AND TO PUBLISH THE USEFUL RESULTS.
Governing document: CIO - FOUNDATION CONVERSIONDATED 27 SEP 2022
Trustees (7)
- Emma Green Chair since 2022
- Billy Michael Lucas since 2025
- Dr Catherine O'Sullivan since 2025
- Loretta Macinnes since 2022
- Ruth Diazaraque since 2025
- Susan Berry since 2019
- William Henry Waddington Eldridge since 2025
Connected charities (0)
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