Registered charity (CIO) · Cambridge
Cambridge Rare Disease Network
- 7 trustees
- Income £143k (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
Network
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales
- Website
- www.camraredisease.org (opens in a new tab)
- Registered
- 2016
Income and spending
- YearIncomeSpending
- 2025£143k£193k
- 2024£182k£232k
- 2023£224k£192k
Earlier years
- 2022£141k£123k
- 2021£164k£103k
Income trend, 2021 to 2025.
Income source mix, 2022: Government grants 6%. From the charity's annual return.
Charitable objects
1) THE RELIEF OF SICKNESS OF PERSONS WITH RARE DISEASES, IN PARTICULAR BUT NOT EXCLUSIVELY BY THE PROVISION OF SUPPORT, ADVICE AND INFORMATION FOR SUCH PERSONS THEIR FAMILIES, CARERS AND THOSE WORKING WITH AFFECTED INDIVIDUALS.2)TO ADVANCE THE EDUCATION OF THE PUBLIC IN GENERAL ON THE SUBJECT OF RARE DISEASES AND RELATED SYNDROMES AND TO PROMOTE RESEARCH FOR THE PUBLIC BENEFIT IN ALL ASPECTS OF THAT SUBJECT AND TO PUBLISH THE USEFUL RESULTS.
Grants received
10 grants · £65,428 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £20,510 (3 grants)
- People's Health Trust · £16,908
- Cambridgeshire Community Foundation · £13,670 (4 grants)
- Department for Digital, Culture, Media & Sport · £8,020
- True Colours Trust · £6,320
Most recent
- Department for Digital, Culture, Media & Sport
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
7 trustees on the board
- Emma Green Chair since 2022
- Billy Michael Lucas since 2025
- Dr Catherine O'Sullivan since 2025
- Loretta Macinnes since 2022
- Ruth Diazaraque since 2025
- Susan Berry since 2019
- William Henry Waddington Eldridge since 2025
Trustees past 6 years
- Susan Berry since 2019
First-time vs portfolio trustees
First-time (7)
- Emma Green Chair since 2022
- Billy Michael Lucas since 2025
- Dr Catherine O'Sullivan since 2025
- Loretta Macinnes since 2022
- Ruth Diazaraque since 2025
- Susan Berry since 2019
- William Henry Waddington Eldridge since 2025
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Mostly recent joiners - limited long-term continuity
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1166365
- Status
- Registered
- Governing document
- CIO - FOUNDATION CONVERSIONDATED 27 SEP 2022
- Contact on the register
- 07725039780 · info@camraredisease.org
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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