Registered charity (CIO) · London
DC Action
- 5 trustees
- Income £12k (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
- Where
- Throughout England And Wales
- Website
- dcaction.org (opens in a new tab)
- Registered
- 2016
Income and spending
- YearIncomeSpending
- 2025£12k£12k
- 2024£4k£2k
- 2023£2k£2k
Earlier years
- 2022£1k£273
- 2021£2k£276
Income trend, 2021 to 2025.
Charitable objects
THE OBJECTS OF THE CIO ARE:1. TO PRESERVE AND PROTECT THE HEALTH OF PATIENTS WITH DYSKERATOSIS CONGENITA AND OTHER TELOMERE DISORDERS, BY PROVIDING AND ASSISTING IN THE PROVISION OF FACILITIES, SUPPORT SERVICES AND EDUCATIONAL MATERIALS NOT NORMALLY PROVIDED BY THE STATUTORY AUTHORITIES. TO ADVANCE THE EDUCATION OF THE PUBLIC BY THE PUBLICATION OF A WEBSITE, NEWSLETTERS, INFORMATION SHEETS AND OTHER MATERIALS.2. TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF THOSE AFFECTED BY DYSKERATOSIS CONGENITA THROUGH THE PROVISION OF ADVOCACY, SUPPORT, EDUCATION AND PRACTICAL ADVICE.3. TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC, MEDICAL AND SCIENTIFIC PROFESSIONALS IN ALL AREAS RELATING TO DYSKERATOSIS CONGENITA AND OTHER TELOMERE DISORDERS.
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
5 trustees on the board
- Alice Mary Buckley since 2017
- Dr Hilary Jane Longhurst since 2016
- Dr Jane Paxton since 2016
- Jill Yvonne Whitehouse since 2024
- Willem Buckley since 2021
Trustees past 6 years
- Alice Mary Buckley since 2017
- Dr Hilary Jane Longhurst since 2016
- Dr Jane Paxton since 2016
First-time vs portfolio trustees
First-time (4)
- Alice Mary Buckley since 2017
- Dr Hilary Jane Longhurst since 2016
- Dr Jane Paxton since 2016
- Willem Buckley since 2021
Portfolio (1)
- Jill Yvonne Whitehouse since 2024
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1167150
- Status
- Registered
- Governing document
- CIO - Foundation Registered 17 May 2016
- Contact on the register
- 02088000027 · info@dcaction.org
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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