DC Action

Registered charity 1167150 CIO Registered since 2016

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

7.2y median 9y

average tenure

10y

longest tenure

trustees past 6 years

13.8y

average years in governance

4 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

General Charitable Purposes 5The Advancement Of Health Or Saving Of Lives 4Environment/conservation/heritage 1The Prevention Or Relief Of Poverty 1

Commercial experience

Business services 4Finance 2Health and social care 2

Gaps to watch

Several long-serving trustees could step down together

Boards that share trustees

The Multibank 1 shared trustee

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Related organisations

The Multibank 1 shared trustee
Association for Blindness and Leprosy Eradication Similar size; both Health
The Saffron Trust Similar size; both Health
Swift Medics Similar size; both Health
The Lyallpur Medical Services Trust Similar size; both Health
The Nathan Massey Foundation Similar size; both Health

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	http://dcaction.org
Email	info@dcaction.org
Phone	02088000027
Address	83 Digby Crescent, London, N4 2HS

Finances

£12,109 latest income

Year	Income	Spending
2021	£1,647	£276
2022	£1,219	£273
2023	£2,092	£1,716
2024	£4,307	£1,780
2025	£12,109	£11,629

What it does

What

General Charitable PurposesThe Advancement Of Health Or Saving Of Lives

Who

Children/young PeopleElderly/old PeopleOther Defined Groups

How

Provides Advocacy/advice/information

Charitable objects

THE OBJECTS OF THE CIO ARE:1. TO PRESERVE AND PROTECT THE HEALTH OF PATIENTS WITH DYSKERATOSIS CONGENITA AND OTHER TELOMERE DISORDERS, BY PROVIDING AND ASSISTING IN THE PROVISION OF FACILITIES, SUPPORT SERVICES AND EDUCATIONAL MATERIALS NOT NORMALLY PROVIDED BY THE STATUTORY AUTHORITIES. TO ADVANCE THE EDUCATION OF THE PUBLIC BY THE PUBLICATION OF A WEBSITE, NEWSLETTERS, INFORMATION SHEETS AND OTHER MATERIALS.2. TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF THOSE AFFECTED BY DYSKERATOSIS CONGENITA THROUGH THE PROVISION OF ADVOCACY, SUPPORT, EDUCATION AND PRACTICAL ADVICE.3. TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC, MEDICAL AND SCIENTIFIC PROFESSIONALS IN ALL AREAS RELATING TO DYSKERATOSIS CONGENITA AND OTHER TELOMERE DISORDERS.

Governing document: CIO - Foundation Registered 17 May 2016

Trustees (5)

5trustees

65median age

0aged 70+

Alice Mary Buckley since 2017
Dr Hilary Jane Longhurst since 2016
Dr Jane Paxtonage 64 since 2016
Jill Yvonne Whitehouseage 66 since 2024
Willem Buckley since 2021

Connected charities (1)

The Multibank 1 shared trustee

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