Pitt Hopkins UK
Registered charity 1167153 CIO Registered since 2016
Operates: Throughout England And Wales, Ireland, Scotland, Northern Ireland
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Sector coverage
Gaps to watch
- No commercial or business experience on the board
- Several long-serving trustees could step down together
- Narrow spread of causes across the board
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.pitthopkins.org.uk |
| sue@pitthopkins.org.uk | |
| Phone | 02032392123 |
| Address | 4 Forest Oaks, Horsham, West Sussex, RH13 6RX |
Finances
£34,473 latest income
| Year | Income | Spending |
|---|---|---|
| 2020 | £19,005 | £69,504 |
| 2021 | £34,383 | £10,684 |
| 2022 | £36,088 | £8,012 |
| 2023 | £25,155 | £2,159 |
| 2024 | £34,473 | £5,740 |
What it does
What
DisabilityWho
People With DisabilitiesThe General Public/mankindHow
Provides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
TO RELIEVE THE NEEDS OF CHILDREN AND YOUNG PEOPLE DIAGNOSED WITH PITT HOPKINS SYNDROME,THEIR FAMILIES AND CARERS BY:1.INCREASING THE PROFILE OF PITT-HOPKINS SYNDROME FOR PUBLIC BENEFIT BY RAISING AWARENESS OF PITT-HOPKINS SYNDROME. 2.SUPPORTING FAMILIES HAVING A DIAGNOSIS OF PITT-HOPKINS SYNDROME BY PROVIDING INFORMATION AND FUNDING TO FACILITATE OPPORTUNITIES AND MEANS TO COMMUNICATE WITH EACH OTHER AND TO EXCHANGE EXPERIENCES AND ADVICE. 3.PROMOTING UNDERSTANDING OF PITT-HOPKINS SYNDROME BY PROVIDING INFORMATION TO MEDICAL AND SOCIAL PROFESSIONALS. 4.SUPPORTING RESEARCH INTO PITT-HOPKINS SYNDROME, IN PARTICULAR NATURAL HISTORY STUDIES AND BREATHING ANOMALIES AND THE DISSEMINATION OF THE USEFUL RESULTS OF THAT RESEARCH.
Governing document: CIO - Foundation Registered 17 May 2016
Trustees (6)
- SUE Routledge Chair since 2016
- Brian Routledge since 2016
- Graham John Fiveash since 2022
- Leanne Groves since 2016
- Mark Lewis Haywood since 2024
- Melissa-Jane Stewart since 2021
Connected charities (0)
No charities share a trustee (from current data).
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