The Governance RegisterEdition 2026 · Compiled 12th July 2026

Foundation for Angelman Syndrome Therapeutics UK

Registered charity 1167984 CIO Registered since 2016

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

7
trustees on the board
8.7y median 10y
average tenure
10y
longest tenure
6
trustees past 6 years
8.6y
average years in governance
7 vs 0 portfolio
first-time trustees
2
company-linked trustees

Sector coverage

Disability 7The Advancement Of Health Or Saving Of Lives 7

Commercial experience

Education 2

Gaps to watch

  • Several long-serving trustees could step down together
  • Narrow spread of causes across the board
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Related organisations

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Websitehttps://cureangelman.org.uk/
Emailinfo@cureangelman.org.uk
Phone02074690225
Address13 Inglethorpe Street, LONDON, SW6 6NS

Finances

£183,082 latest income

YearIncomeSpending
2020£212,791£3,392
2021£321,240£2,797
2022£328,007£5,544
2023£267,648£13,076
2024£183,082£37,827

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

Other Defined Groups

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE ADVANCEMENT OF HEALTH FOR THE BENEFIT OF THE PUBLIC BY THE PROVISION OF SUPPORT TOWARDS RESEARCH INTO ANGELMAN SYNDROME AND RELATED DISORDERS, INCLUDING THEIR TREATMENT AND CURE, AND THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH.THE RELIEF OF THOSE IN NEED OF CARE, ASSISTANCE AND SUPPORT AS A CONSEQUENCE OF LIVING WITH ANGELMAN SYNDROME.

Governing document: CIO - Foundation Registered 01 Jul 2016

Trustees (7)

7trustees
45median age
0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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