The Governance RegisterEdition 2026 · Compiled 12th July 2026

The Sandcastle Trust

Registered charity 1169523 CIO Registered since 2016

Operates: Throughout England And Wales, Northern Ireland, Scotland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

9
trustees on the board
6.9y median 9y
average tenure
10y
longest tenure
6
trustees past 6 years
7.4y
average years in governance
8 vs 0 portfolio
first-time trustees
1
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 1The Advancement Of Health Or Saving Of Lives 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 1

Gaps to watch

  • Several long-serving trustees could step down together
  • Narrow spread of causes across the board

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Related organisations iRelated organisationsBoards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Websitewww.sandcastletrust.org
Emailinfo@sandcastletrust.org
Phone07540382724
AddressThe Sandcastle Trust, c/o Anderida, Beaconsfield Road, Chelwood Gate, East Sussex, RH17 7LG

Finances

£159,478 latest income

YearIncomeSpending
2021£38,318£30,998
2022£64,392£62,674
2023£112,481£61,521
2024£92,999£89,187
2025£159,478£104,868

What it does

What

Disability

Who

Children/young PeoplePeople With DisabilitiesOther Defined Groups

How

Provides ServicesProvides Advocacy/advice/informationOther Charitable Activities

Charitable objects

FOR THE PUBLIC BENEFIT, THE RELIEF OF SICKNESS OF THOSE WITH A RARE GENETIC CONDITION AND IN PARTICULAR TO HELP AND SUPPORT FAMILIES LIVING WITHIN THE UK WHEREBY A MEMBER OR MEMBERS OF THAT FAMILY HAVE BEEN DIAGNOSED WITH A RARE GENETIC CONDITION. PARTICULAR EMPHASIS IS PLACED ON ENHANCING THEIR FAMILY LIFE BY(BUT WITHOUT LIMITATION):(A) THE PROVISION OF ACCESSIBLE HOLIDAYS;(B) THE PROVISION OF ACCESSIBLE DAY TRIPS;(C) THE PROVISION OF GRANTS TO ASSIST FAMILIES PLAN THEIR OWN ACCESSIBLE FAMILY HOLIDAY;(D) ASSISTING IN THE PROVISION OF CARE FOR THE INDIVIDUAL(S) WITH THE GENETIC CONDITION WHILST ON THEHOLIDAY/DAY TRIP IF REQUIRED;(E) RESPITE FOR CARERS EITHER BY WAY OF A GRANT, HOLIDAY OR DAY TRIP AWAY FROM THEIR CARING ROLE; AND(F) THE PROVISION OF SUPPORT AND INFORMATION ON ACCESSIBLE HOLIDAYS GENERALLY TO FAMILIES AFFECTED BY RAREGENETIC CONDITIONS.

Governing document: CIO - FOUNDATION Registered 06 Oct 2016

Trustees (9)

9trustees
0aged 70+

Connected charities (1)

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