Registered charity (CIO) · Swansea
Hands UP for Downs
Also known as Hufd (Charity Commission)
- 8 trustees
- Income £73k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability and 2 more
- Where
- Neath Port Talbot, City Of Swansea
- Website
- www.handsupfordowns.co.uk (opens in a new tab)
- Registered
- 2016
Income and spending
- YearIncomeSpending
- 2025£73k£87k
- 2024£98k£78k
- 2023£85k£61k
Earlier years
- 2022£79k£59k
- 2021£24k£27k
Income trend, 2021 to 2025.
Income source mix, 2025: Government grants 7%. From the charity's annual return.
Charitable objects
THE OBJECTS OF THE CIO ARE1. TO ASSIST IN THE CARE AND DEVELOPMENT OF CHILDREN WITH DOWN SYNDROME BY THE PROVISION OF SUPPORT, ADVICE AND TRAINING TO THOSE RESPONSIBLE FOR THEIR CARE, AND TO HEALTH AND EDUCATIONAL SPECIALISTS WITH THE OBJECT OF IMPROVING AND ADVANCING THE HEALTH AND EDUCATION OF CHILDREN WITH DOWN SYNDROME. 2. THE PROMOTION OF SOCIAL INCLUSION AMONG CHILDREN WITH DOWN SYNDROME AND THEIR FAMILIES, WHO MAY BE EXCLUDED FROM SOCIETY, OR PARTS OF SOCIETY, DUE TO THEIR DISABILITY, BY: A) PROVIDING A PLAY SCHEME AND SUPPORT AND EDUCATION SERVICES TO ENABLE THE CHILDREN TO DEVELOP AND GAIN NEW SKILLS. B) PROVIDING RECREATIONAL FACILITIES AND OPPORTUNITIES FOR THE CHILDREN AND PARENTSC) RAISING PUBLIC AWARENESS OF THE ISSUES AFFECTING PARENTS OF CHILDREN WITH DOWN SYNDROME, THE CHILDREN AND THEIR SIBLINGS, BOTH GENERALLY AND IN RELATION TO IMPROVING THEIR SOCIAL INCLUSION. 3. TO ADVANCE THE DEVELOPMENT OF CHILDREN WITH DOWN SYNDROME AND EDUCATE THE PUBLIC IN THE SUBJECT OF DOWN SYNDROME. 4. TO PROVIDE EDUCATION, TRAINING, INFORMATION AND ADVICE TO PARENTS/CARERS WITH THE OBJECT OF EMPOWERING THEM TO ADVANCE THEIR CHILDREN IN LIFE AND ASSIST THEIR DEVELOPMENT.
Grants received
1 grant · £96,256 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £96,256
Most recent
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
8 trustees on the board
- Alan Christopher Santimano since 2016
- Anne Julia Barker MA since 2016
- Ferial Raine since 2023
- Janet Chaplin since 2016
- Lara Smrtnik since 2018
- Nicola Jayne Preece since 2016
- Rachel Louise Dent since 2022
- SAM Fisher since 2016
Trustees past 6 years
- Alan Christopher Santimano since 2016
- Anne Julia Barker MA since 2016
- Janet Chaplin since 2016
- Lara Smrtnik since 2018
- Nicola Jayne Preece since 2016
- SAM Fisher since 2016
First-time vs portfolio trustees
First-time (8)
- Alan Christopher Santimano since 2016
- Anne Julia Barker MA since 2016
- Ferial Raine since 2023
- Janet Chaplin since 2016
- Lara Smrtnik since 2018
- Nicola Jayne Preece since 2016
- Rachel Louise Dent since 2022
- SAM Fisher since 2016
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1170395
- Status
- Registered
- Governing document
- CIO - ASSOCIATION Registered 25 Nov 2016
- Contact on the register
- 01792218547 · handsupfordowns@outlook.com
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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