The Governance RegisterEdition 2026 · Compiled 12th July 2026

Norrie Disease Foundation

Registered charity 1171274 CIO Registered since 2017

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

6
trustees on the board
7y median 8.5y
average tenure
9y
longest tenure
4
trustees past 6 years
9y
average years in governance
6 vs 0 portfolio
first-time trustees
1
company-linked trustees

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Other services 1

Gaps to watch

  • Several long-serving trustees could step down together
  • Narrow spread of causes across the board
🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Related organisations iRelated organisationsBoards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

WebsiteWWW.NORRIEDISEASE.ORG.UK
EmailENQUIRIES@NORRIEDISEASE.ORG.UK
Phone01487898323
AddressThe Norrie Disease Foundation, PO Box 12476, COLCHESTER, CO1 9RB

Finances

£18,429 latest income

YearIncomeSpending
2020£62,797£66,618
2021£71,304£1,822
2022£47,571£28,435
2023£30,562£5,637
2024£18,429£90,092

What it does

What

Education/training

Who

People With DisabilitiesThe General Public/mankind

How

Provides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE OBJECTS OF THE CIO ARE TO RELIEVE THE NEEDS OF THOSE AFFECTED BY NORRIE DISEASE, THEIR FAMILIES, FRIENDS AND CARERS BY:-1. PROMOTING GREATER UNDERSTANDING OF THE CAUSES, SYMPTOMS AND TREATMENT OF NORRIE DISEASE IN ALL ITS FORMS INCLUDING BY THE PROMOTION OF RESEARCH AND SHARING AND DISSEMINATING OF THE RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE GENERAL PUBLIC;2. RAISING PUBLIC AWARENESS OF THE SYMPTOMS, NEEDS AND RELATED MEDICAL CONDITIONS OF THOSE LIVING WITH NORRIE DISEASE.

Governing document: CIO - FOUNDATION Registered 24 Jan 2017

Trustees (6)

6trustees
0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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