Registered charity (CIO) · Colchester
Norrie Disease Foundation
- 6 trustees
- Income £18k (2024)
Official record Charity Commission · updated 4th October 2026 · Sources
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- Education/training
- Where
- Throughout England And Wales
- Website
- WWW.NORRIEDISEASE.ORG.UK (opens in a new tab)
- Registered
- 2017
Income and spending
- YearIncomeSpending
- 2024£18k£90k
- 2023£31k£6k
- 2022£48k£28k
Earlier years
- 2021£71k£2k
- 2020£63k£67k
Income trend, 2020 to 2024.
Charitable objects
THE OBJECTS OF THE CIO ARE TO RELIEVE THE NEEDS OF THOSE AFFECTED BY NORRIE DISEASE, THEIR FAMILIES, FRIENDS AND CARERS BY:-1. PROMOTING GREATER UNDERSTANDING OF THE CAUSES, SYMPTOMS AND TREATMENT OF NORRIE DISEASE IN ALL ITS FORMS INCLUDING BY THE PROMOTION OF RESEARCH AND SHARING AND DISSEMINATING OF THE RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE GENERAL PUBLIC;2. RAISING PUBLIC AWARENESS OF THE SYMPTOMS, NEEDS AND RELATED MEDICAL CONDITIONS OF THOSE LIVING WITH NORRIE DISEASE.
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
6 trustees on the board
- Wendy Joan Horrobin Chair since 2017
- Anthony Reyers since 2021
- Kelly Louise Leggett since 2017
- Kelly Robinson since 2018
- Prof Cornelis Jan Kros since 2024
- Theresa Peacock since 2017
Trustees past 6 years
- Wendy Joan Horrobin Chair since 2017
- Kelly Louise Leggett since 2017
- Kelly Robinson since 2018
- Theresa Peacock since 2017
First-time vs portfolio trustees
First-time (6)
- Wendy Joan Horrobin Chair since 2017
- Anthony Reyers since 2021
- Kelly Louise Leggett since 2017
- Kelly Robinson since 2018
- Prof Cornelis Jan Kros since 2024
- Theresa Peacock since 2017
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
- Narrow spread of causes across the board
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1171274
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 24 Jan 2017
- Contact on the register
- 01487898323 · ENQUIRIES@NORRIEDISEASE.ORG.UK
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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