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Registered charity (CIO) · Bristol

UK Infantile Spasms Trust

  • 7 trustees
  • Income £87k (2025)
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Official record Charity Commission · updated 27th September 2026 · Sources

Network

The large node is UK Infantile Spasms Trust. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales
Website
ukinfantilespasmstrust.org (opens in a new tab)
Registered
2017

Income and spending

  • YearIncomeSpending
  • 2025£87k£40k
  • 2024£44k£24k
  • 2023£24k£16k
Earlier years
  • 2022£46k£17k
  • 2021£40k£16k

Income trend, 2021 to 2025.

Charitable objects

THE RELIEF OF THE NEEDS OF THOSE SUFFERING FROM INFANTILE SPASMS OR WEST SYNDROME BY (BUT NOT EXCLUSIVELY):(A) THE PROVISION OF INFORMATION, ADVICE, OTHER ASSISTANCE AND SUPPORT TO CHILDREN, PARENTS, FAMILIES AND CARERS OF THOSE AFFECTED BY INFANTILE SPASMS OR WEST SYNDROME;(B) THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF INFANTILE SPASMS OR WEST SYNDROME AND THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH;(C) RAISING THE AWARENESS OF THE PUBLIC AND OF THE MEDICAL PROFESSIONS ON ANY MATTER RELATED TO THE CHARITIES OBJECTS(D) PROVIDING INFORMATION AND TRAINING TO THE MEDICAL PROFESSIONS ON ANY MATTER RELATED TO THE CHARITIES OBJECTS.

Grants received

1 grant · £3,326 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • Department for Digital, Culture, Media & Sport · £3,326

Most recent

  • Department for Digital, Culture, Media & Sport £3,3262020-07-23
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

7 trustees on the board

5.6y median 6y
average tenure
9y
longest tenure

Trustees past 6 years

6.1y
average years in governance

First-time vs portfolio trustees

First-time (7)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 7General Charitable Purposes 7The Advancement Of Health Or Saving Of Lives 7

Gaps to watch

  • No commercial or business experience on the board
  • Several long-serving trustees could step down together

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£87k latest income · income exceeded spending in 2024 and 2025

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1172167
Status
Registered
Governing document
CIO - FOUNDATION Registered 21 Mar 2017
Contact on the register
0117 956 8868 · UKINFANTILESPASMSTRUST@GMAIL.COM
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data