UK Infantile Spasms Trust

Registered charity 1172167 CIO Registered since 2017

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

5.6y median 6y

average tenure

longest tenure

trustees past 6 years

5.9y

average years in governance

7 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 7General Charitable Purposes 7The Advancement Of Health Or Saving Of Lives 7

Gaps to watch

No commercial or business experience on the board
Several long-serving trustees could step down together

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Related organisations

Cynllun Adfocatiaeth Iechyd Meddwl the Mental Health Advocacy Scheme Similar size; both Disability
The Gail Taylor Charity Similar size; both Disability
Skegness DAY Centre Limited Similar size; both Disability
Ebony Steelband Trust Similar size; both Disability
The Sheffield Dial- A -Ride Club Similar size; both Disability
Home-Start Kettering Area Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	https://ukinfantilespasmstrust.org
Email	UKINFANTILESPASMSTRUST@GMAIL.COM
Phone	0117 956 8868
Address	28 OVERNHILL ROAD, BRISTOL, BS16 5DN

Finances

£87,099 latest income

Year	Income	Spending
2021	£40,081	£15,949
2022	£45,795	£16,830
2023	£23,820	£16,025
2024	£44,248	£23,833
2025	£87,099	£40,354

What it does

What

General Charitable PurposesThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young People

How

Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE RELIEF OF THE NEEDS OF THOSE SUFFERING FROM INFANTILE SPASMS OR WEST SYNDROME BY (BUT NOT EXCLUSIVELY):(A) THE PROVISION OF INFORMATION, ADVICE, OTHER ASSISTANCE AND SUPPORT TO CHILDREN, PARENTS, FAMILIES AND CARERS OF THOSE AFFECTED BY INFANTILE SPASMS OR WEST SYNDROME;(B) THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF INFANTILE SPASMS OR WEST SYNDROME AND THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH;(C) RAISING THE AWARENESS OF THE PUBLIC AND OF THE MEDICAL PROFESSIONS ON ANY MATTER RELATED TO THE CHARITIES OBJECTS(D) PROVIDING INFORMATION AND TRAINING TO THE MEDICAL PROFESSIONS ON ANY MATTER RELATED TO THE CHARITIES OBJECTS.

Governing document: CIO - FOUNDATION Registered 21 Mar 2017

Trustees (7)

7trustees

0aged 70+

Jennifer Rawling Chair since 2017
Alice Goldhill since 2020
Amy Louise Dowding since 2022
Chloe Amber Louise Cox since 2024
Louisa Coyle since 2020
Louise Elizabeth Derbyshire since 2023
Samia Sanders since 2017

Connected charities (0)

No charities share a trustee (from current data).

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