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Registered charity (CIO) · Hook

Pten UK and Ireland Patient Group

Pten UK and Ireland Patient Group is a registered charity (number 1172205) based in Hook, governed by 9 trustees. Latest income £48k (2024). Source: Charity Commission register, updated 4th October 2026.

  • 9 trustees
  • Income £48k (2024)
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Official record Charity Commission · updated 4th October 2026 · Sources

Network

The large node is Pten UK and Ireland Patient Group. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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People on this board also govern

Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.

About

What it does
The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales, Ireland, Scotland, Northern Ireland
Website
www.ptenuki.org (opens in a new tab)
Registered
2017

Income and spending

  • YearIncomeSpending
  • 2024£48k£29k
  • 2023£31k£25k
  • 2022£9k£10k
Earlier years
  • 2021£2k£2k
  • 2020£9k£3k

Income trend, 2020 to 2024.

Charitable objects

A) TO PROMOTE AND PROTECT THE HEALTH OF PERSONS AFFECTED BY PTEN HAMARTOMA TUMOUR SYNDROME AND RELATED SYNDROMES IN THE UK AND IRELAND BY THE PROVISION OF SUPPORT, INFORMATION AND PRACTICAL ADVICE FOR SUCH PERSONS, THEIR FAMILIES AND CARERS.B) TO IMPROVE THE HEALTHCARE OF PERSONS AFFECTED BY PTEN HAMARTOMA TUMOUR SYNDROME AND RELATED SYNDROMES IN THE UK AND IRELAND THROUGH ADVANCING THE EDUCATION AND AWARENESS OF MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC. C) TO SUPPORT AND PROMOTE RESEARCH, ESPECIALLY BUT NOT EXCLUSIVELY INTO THE DIAGNOSIS, TREATMENT AND PREVENTION OF PTEN HAMARTOMA TUMOUR SYNDROME AND RELATED SYNDROMES IN THE UK AND IRELAND.

Grants received

3 grants · £53,500 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £30,000 (2 grants)
  • Postcode Society Trust · £23,500

Most recent

  • Postcode Society Trust £23,5002025-10-08
  • The National Lottery Community Fund £20,0002024-08-01
  • The National Lottery Community Fund £10,0002023-05-05
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

9 trustees on the board

4.6y median 2y
average tenure
9y
longest tenure

Trustees past 6 years

5.2y
average years in governance

First-time vs portfolio trustees

First-time (8)

Portfolio (1)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

The Advancement Of Health Or Saving Of Lives 9Disability 8Arts/culture/heritage/science 1Education/training 1

Gaps to watch

  • No commercial or business experience on the board

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2020
2021
2022
2023
2024
incomespending£48k latest income · income exceeded spending in 2023 and 2024

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1172205
Status
Registered
Governing document
CIO - FOUNDATION Registered 22 Mar 2017
Contact on the register
07768864667 · info@ptenuki.org
Edition
Register edition compiled 4th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data