Pten UK and Ireland Patient Group

Registered charity 1172205 CIO Registered since 2017

Operates: Throughout England And Wales, Ireland, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

5.9y median 9y

average tenure

longest tenure

trustees past 6 years

6.4y

average years in governance

6 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

The Advancement Of Health Or Saving Of Lives 7Disability 6Arts/culture/heritage/science 1Education/training 1

Gaps to watch

No commercial or business experience on the board
Several long-serving trustees could step down together

Boards that share trustees

The Rock Academy Foundation 1 shared trustee

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The Lexus Foundation Similar size; both Disability
Friends of Ashanti, Ghana Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.ptenuki.org
Email	info@ptenuki.org
Phone	07768864667
Address	11 Whinchat Close, Hartley Wintney, Hook, RG27 8TT

Finances

£47,904 latest income

Year	Income	Spending
2020	£9,298	£3,446
2021	£1,776	£1,908
2022	£9,454	£10,212
2023	£31,411	£24,739
2024	£47,904	£29,236

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeopleElderly/old PeoplePeople With Disabilities

How

Provides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

A) TO PROMOTE AND PROTECT THE HEALTH OF PERSONS AFFECTED BY PTEN HAMARTOMA TUMOUR SYNDROME AND RELATED SYNDROMES IN THE UK AND IRELAND BY THE PROVISION OF SUPPORT, INFORMATION AND PRACTICAL ADVICE FOR SUCH PERSONS, THEIR FAMILIES AND CARERS.B) TO IMPROVE THE HEALTHCARE OF PERSONS AFFECTED BY PTEN HAMARTOMA TUMOUR SYNDROME AND RELATED SYNDROMES IN THE UK AND IRELAND THROUGH ADVANCING THE EDUCATION AND AWARENESS OF MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC. C) TO SUPPORT AND PROMOTE RESEARCH, ESPECIALLY BUT NOT EXCLUSIVELY INTO THE DIAGNOSIS, TREATMENT AND PREVENTION OF PTEN HAMARTOMA TUMOUR SYNDROME AND RELATED SYNDROMES IN THE UK AND IRELAND.

Governing document: CIO - FOUNDATION Registered 22 Mar 2017

Trustees (7)

7trustees

0aged 70+

Clare Thurlow since 2025
Dr Katherine Lachlan since 2017
Ellen Challis since 2017
Eleanor Welsh since 2024
IAN Stock since 2017
Kelly Kearley since 2017
Priyanka Tibarewal since 2024

Connected charities (1)

The Rock Academy Foundation 1 shared trustee

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