Fibrous Dysplasia Support Society
Registered charity 1175622 Registered since 2017
Operates: Throughout England And Wales, Scotland
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Sector coverage
Commercial experience
Gaps to watch
- Several long-serving trustees could step down together
- Narrow spread of causes across the board
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.fdssuk.org.uk |
| enquire@fdssuk.org.uk | |
| Phone | 07789958722 |
| Address | 82 Nottingham Road, Somercotes, Alfreton, Derbyshire, DE55 4LY |
Finances
£14,123 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £6,078 | £3,171 |
| 2022 | £8,618 | £1,465 |
| 2023 | £1,451 | £730 |
| 2024 | £2,092 | £2,816 |
| 2025 | £14,123 | £1,357 |
What it does
What
The Advancement Of Health Or Saving Of LivesWho
People With DisabilitiesHow
Provides Advocacy/advice/informationCharitable objects
TO RELIEVE SICKNESS AND TO PROMOTE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT OF THOSE DIAGNOSED AND SUFFERING FROM FIBROUS DYSPLASIA AND MCCUNE-ALBRIGHT SYNDROME (INCLUDING ASSOCIATED CONDITIONS) AND THEIR CARERS IN PARTICULAR BUT NOT LIMITED TO THE FOLLOWING:-A)ENCOURAGING, PROMOTING AND ASSISTING IN A BETTER UNDERSTANDING OF THE CONDITIONS AND POSSIBLE TREATMENT OF THEM;B)PROMOTE INCREASED AWARENESS AMONGST MEDICAL PROFESSIONALS AND GENERALLY;ANDD)ENCOURAGE PERSONS MEET OTHER SUFFERERS AND TO SHARE THEIR EXPERIENCES.
Governing document: MEMORANDUM AND ARTICLES INCORPORATED 18 AUG 2016AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 30 OCT 2017
Trustees (8)
- Heather Delaneyage 48 since 2016
- Jamie Watsonage 57 since 2016
- Joyce Mendoza since 2020
- Nicola Deeley since 2024
- Sarah Amy Russellage 53 since 2018
- Sophie Collier since 2024
- Stacy Richardson since 2020
- Stephen Richard John Mcmurrayage 52 since 2000
Linked company (Companies House)
Fibrous Dysplasia Support Society · 10336269 · Active
PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 18/08/2016
4 governing document(s) held from Companies House.
Connected charities (0)
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