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Registered charity · Derbyshire

Fibrous Dysplasia Support Society

Fibrous Dysplasia Support Society is a registered charity (number 1175622) based in Derbyshire, governed by 9 trustees. Latest income £14k (2025). Source: Charity Commission register, updated 11th October 2026.

Also known as Fdssuk (Charity Commission)

  • 9 trustees
  • Income £14k (2025)
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Official record Charity Commission · updated 11th October 2026 · Sources · Free, no card or password

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Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.

About

What it does
The Advancement Of Health Or Saving Of Lives
Where
Throughout England And Wales, Scotland
Website
www.fdssuk.org.uk (opens in a new tab)
Linked company
Fibrous Dysplasia Support Society
Registered
2017

Income and spending

  • YearIncomeSpending
  • 2025£14k£1k
  • 2024£2k£3k
  • 2023£1k£730
Earlier years
  • 2022£9k£1k
  • 2021£6k£3k

Income trend, 2021 to 2025.

Charitable objects

TO RELIEVE SICKNESS AND TO PROMOTE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT OF THOSE DIAGNOSED AND SUFFERING FROM FIBROUS DYSPLASIA AND MCCUNE-ALBRIGHT SYNDROME (INCLUDING ASSOCIATED CONDITIONS) AND THEIR CARERS IN PARTICULAR BUT NOT LIMITED TO THE FOLLOWING:-A)ENCOURAGING, PROMOTING AND ASSISTING IN A BETTER UNDERSTANDING OF THE CONDITIONS AND POSSIBLE TREATMENT OF THEM;B)PROMOTE INCREASED AWARENESS AMONGST MEDICAL PROFESSIONALS AND GENERALLY;ANDD)ENCOURAGE PERSONS MEET OTHER SUFFERERS AND TO SHARE THEIR EXPERIENCES.

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

9 trustees on the board

8.7y median 8y
average tenure
26y
longest tenure

Trustees past 6 years

9y
average years in governance

First-time vs portfolio trustees

First-time (9)

5
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

The Advancement Of Health Or Saving Of Lives 9

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Business services 5Health and social care 1

Gaps to watch

  • Several long-serving trustees could step down together
  • Narrow spread of causes across the board

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£14k latest income

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1175622
Status
Registered
Governing document
MEMORANDUM AND ARTICLES INCORPORATED 18 AUG 2016AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 30 OCT 2017
Companies House
Company number 10336269 · Active
Contact on the register
07789958722 · enquire@fdssuk.org.uk
Edition
Register edition compiled 11th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

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