The Charlie Gard Foundation
Registered charity 1176344 CIO Registered since 2017
Operates: Throughout England And Wales, Italy, Spain, United States, Ireland, Scotland
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Sector coverage
Commercial experience
Gaps to watch
- Small board - little cover if a trustee leaves
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.thecharliegardfoundation.org |
| info@thecharliegardfoundation.org | |
| Phone | 07958077771 |
| Address | Charlie Gard Foundation, Centurion House, London Road, STAINES-UPON-THAMES, Middlesex, TW18 4AX |
Finances
£1,653 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £77,841 | £389,264 |
| 2022 | £96,266 | £261,828 |
| 2023 | £36,774 | £206,010 |
| 2024 | £17,312 | £106,701 |
| 2025 | £1,653 | £88,284 |
What it does
What
The Advancement Of Health Or Saving Of LivesDisabilityWho
Children/young PeopleElderly/old PeopleOther Defined GroupsThe General Public/mankindHow
Makes Grants To IndividualsMakes Grants To OrganisationsProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
FOR THE PUBLIC BENEFIT, TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF MITOCHONDRIAL DISEASE AND THEIR FAMILIES AND CARERS BY ALL OR ANY OF THE FOLLOWING MEANS:(1) PROVIDING FINANCIAL SUPPORT FOR RESEARCH INTO METHODS OF DIAGNOSIS, TREATMENT AND MANAGEMENT FOR MITOCHONDRIAL DISEASE AND RELATED SERVICES, AND TO HELP PUBLISH AND DISSEMINATE THE FINDINGS OF SUCH RESEARCH;(2) RAISING AWARENESS ABOUT ALL AND ANY ISSUES RELATED TO MITOCHONDRIAL DISEASE AMONG THE PUBLIC, MEDIA, LEGISLATORS AND AMONGST HEALTHCARE PROFESSIONALS;(3) PROVIDING TECHNICAL ADVICE TO GOVERNMENT AND OTHERS ON MATTERS RELATED TO MITOCHONDRIAL DISEASE, AND COMMENTING ON PROPOSED OR EXISTING LEGISLATION IMPACTING SERIOUS MEDICAL TREATMENT CASES; AND(4) PROVIDING FAMILIES LIVING WITH MITOCHONDRIAL DISEASE WITH INFORMATION AND SUPPORT, INCLUDING FINANCIAL SUPPORT WHERE POSSIBLE.FOR THE PURPOSES OF THIS CLAUSE "MITOCHONDRIAL DISEASE" MEANS ANY OF THE GROUP OF CHRONIC, GENETIC DISORDERS CAUSED BY DYSFUNCTIONAL MITOCHONDRIA AND "SERIOUS MEDICAL TREATMENT CASE" HAS THE SAME MEANING AS GIVEN IN PRACTICE DIRECTION E, SUPPLEMENTING PART 9 OF THE COURT OF PROTECTION RULES, 2007.NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008.
Governing document: CIO - FOUNDATION Registered 18 Dec 2017
Trustees (3)
- James Evers since 2022
- Jeffrey Mendlesohn since 2019
- Nicola Elliottage 62 since 2025
Connected charities (0)
No charities share a trustee (from current data).
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