The Governance RegisterEdition 2026 · Compiled 12th July 2026

Arrhythmogenic Cardiomyopathy Trust

Registered charity 1176790 CIO Registered since 2018

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

3
trustees on the board
8y median 8y
average tenure
8y
longest tenure
3
trustees past 6 years
11y
average years in governance
2 vs 0 portfolio
first-time trustees
1
company-linked trustees

Sector coverage

The Advancement Of Health Or Saving Of Lives 3Economic/community Development/employment 1

Commercial experience

Health and social care 1

Gaps to watch

  • Several long-serving trustees could step down together
  • Small board - little cover if a trustee leaves

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Related organisations

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Emailjames@act-charity.com
Phone07977900938
AddressFlat 97, Rosebank, Holyport Road, LONDON, SW6 6LJ

Finances

£7,055 latest income

YearIncomeSpending
2020£20,303£0
2021£48,591£58,213
2022£4,923£57,788
2023£3,535£137
2024£7,055£0

What it does

What

The Advancement Of Health Or Saving Of Lives

Who

Other Defined Groups

How

Makes Grants To OrganisationsSponsors Or Undertakes Research

Charitable objects

TO PROMOTE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT, RELATING TO INHERITED HEART CONDITIONS AND IN PARTICULAR ARRYTHMOGENIC CARDIOMYOPATHY BY FUNDING RESEARCH PROJECTS, SUCH PROJECTS CAN BE DIAGNOSTIC, CURATIVE, THERAPEUTIC OR PALLIATIVE IN NATURE AND TO ENSURE THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH.

Governing document: CIO - FOUNDATION Registered 23 Jan 2018

Trustees (3)

3trustees
66median age
0aged 70+

Connected charities (1)

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