Mind Body EDS

Registered charity 1177182 CIO Registered since 2018

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

4.8y median 4.5y

average tenure

longest tenure

trustees past 6 years

4.7y

average years in governance

4 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Education/training 4General Charitable Purposes 4The Advancement Of Health Or Saving Of Lives 4

Gaps to watch

No commercial or business experience on the board
Several long-serving trustees could step down together

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Related organisations

North East Jewish Community Services Similar size; both Disability
Russett School Parent Teacher Association Similar size; both Disability
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Denbigh MEN's Shed Limited Similar size; both Disability
William Wilkins Trust Similar size; both Disability
NTM Patient Care UK Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	mindbodyeds.org.uk
Email	info@mindbodyeds.org.uk
Phone	01252 711244
Address	c/o Shaw Gibbs, Wey Court West, Union Road, FARNHAM, Surrey, GU9 7PT

Finances

£6,458 latest income

Year	Income	Spending
2020	£10,388	£6,988
2021	£41,600	£18,954
2022	£31,125	£31,065
2023	£23,109	£16,738
2024	£6,458	£28,497

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeopleElderly/old PeoplePeople With DisabilitiesOther Charities Or Voluntary BodiesThe General Public/mankind

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Other FinanceProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

1) THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROMOTION OF GOOD HEALTH AMONG PEOPLE SUFFERING FROM EHLERS DANLOS SYNDROMES, COMORBIDITIES AND RELATED CONDITIONS IN PARTICULAR BUT NOT EXCLUSIVELY BY: A) PROVIDING INFORMATION AND GRANTS OF FINANCIAL ASSISTANCE TO THOSE DIAGNOSED WITH SUCH CONDITIONS, AND THOSE SEEKING A DIAGNOSIS. B) PROVIDING GRANTS OF FINANCIAL ASSISTANCE TO ORGANISATIONS UNDERTAKING RESEARCH INTO EHLERS DANLOS SYNDROMES, COMORBIDITIES AND RELATED CONDITIONS, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE PUBLIC BENEFIT. 2) TO ADVANCE THE EDUCATION OF THE PUBLIC IN EHLERS DANLOS SYNDROMES, COMORBIDITIES AND RELATED CONDITIONS IN PARTICULAR BUT NOT EXCLUSIVELY BY PROVIDING INFORMATIVE TALKS DESIGNED TO RAISE AWARENESS AND FURTHER KNOWLEDGE OF THE CONDITIONS AMONG THE MEDICAL PROFESSION. FOR THE PURPOSES OF THIS CLAUSE: EHLERS-DANLOS SYNDROMES (EDS) ARE A GROUP OF RARE INHERITED CONDITIONS THAT AFFECT CONNECTIVE TISSUE. CONNECTIVE TISSUES PROVIDE SUPPORT IN SKIN, TENDONS, LIGAMENTS, BLOOD VESSELS, INTERNAL ORGANS AND BONES. THERE ARE THIRTEEN DIFFERENT TYPES OF EDS THAT MAY SHARE SOME SYMPTOMS, INCLUDING: AN INCREASED RANGE OF JOINT MOVEMENT, STRETCHY SKIN, FRAGILE SKIN THAT BREAKS OR BRUISES EASILY. THE DIFFERENT TYPES OF EDS ARE CAUSED BY FAULTS IN CERTAIN GENES THAT MAKE CONNECTIVE TISSUE WEAKER. DEPENDING ON THE TYPE OF EDS, THE FAULTY GENE MAY HAVE BEEN INHERITED FROM ONE PARENT, OR BOTH PARENTS. SOMETIMES THE FAULTY GENE ISN'T INHERITED, BUT OCCURS IN THE PERSON FOR THE FIRST TIME. EDS CAN AFFECT PEOPLE IN DIFFERENT WAYS. FOR SOME, THE CONDITION IS RELATIVELY MILD, WHILE FOR OTHERS THEIR SYMPTOMS CAN BE DISABLING AND LIFE-THREATENING. COMORBIDITIES AND RELATED CONDITIONS INCLUDE: AUTONOMIC NERVOUS SYSTEM DISORDERS; CARDIOVASCULAR DYSAUTONOMIA; FUNCTIONAL GASTROINTESTINAL DISORDERS; IMMUNE SYSTEM DYSREGULATION; EXOCRINE GLAND DYSFUNCTION; MAST CELL ACTIVATION DISORDER; MUSCULOSKELETAL SYSTEM DISORDERS; SKIN AND MUCOSA DISORDERS; NERVOUS SYSTEM DISORDERS; GYNAECOLOGICAL DISORDERS; CHRONIC FATIGUE SYNDROME; CHRONIC PAIN SYNDROME AND PSYCHIATRIC DISORDERS.

Governing document: CIO - FOUNDATION Registered 15 Feb 2018

Trustees (4)

4trustees

0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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