Registered charity (CIO) · Dyfed
Wales Orphan and Rare Lung Disease (World)
- 8 trustees
- Income £2k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
The large node is Wales Orphan and Rare Lung Disease (World). Red nodes are organisations, white nodes are people. Sign in free to explore further.
Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
Do you help lead this organisation? Set up its network · How it works
About
- What it does
- General Charitable Purposes, The Advancement Of Health Or Saving Of Lives
- Where
- Throughout Wales
- Website
- joinusatworld.com (opens in a new tab)
- Registered
- 2018
Income and spending
- YearIncomeSpending
- 2025£2k£496
- 2024£1k£4k
- 2023£2k£1k
Earlier years
- 2022£2k£1k
- 2021£6k£2k
Income trend, 2021 to 2025.
Charitable objects
THE PRESERVATION AND PROTECTION OF GOOD HEALTH FOR THE PUBLIC BENEFIT IN WEST WALES, SPECIFICALLY THE COUNTIES OF PEMBROKESHIRE, CEREDIGION AND CARMARTHENSHIRE, BY PROMOTING THE AWARENESS AND UNDERSTANDING OF RARE LUNG DISEASES THROUGH SUCH MEANS AS THE TRUSTEES THINK FIT INCLUDING:-PROVIDING A FORUM FOR RARE LUNG DISEASE PATIENTS AND THEIR CARERS TO MEET AND SHARE EXPERIENCES;-OFFERING EMOTIONAL AND EDUCATIONAL SUPPORT TO RARE LUNG DISEASE PATIENTS, THEIR FAMILIES AND CARERS INCLUDING SIGNPOSTING TO OTHER RELEVANT BODIES;-ENGAGING RESPIRATORY SPECIALISTS TO REFER OTHER PATIENTS TO THE FORUM;
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
8 trustees on the board
- Michelle Dunning Chair since 2025
- Dr Keir Lewis Professor since 2018
- Gethin James since 2025
- Graham Evans since 2018
- Joseph Annandale since 2018
- Leslie Dale since 2025
- Marie James since 2022
- Sylvia Evans since 2018
Trustees past 6 years
- Dr Keir Lewis Professor since 2018
- Graham Evans since 2018
- Joseph Annandale since 2018
- Sylvia Evans since 2018
First-time vs portfolio trustees
First-time (7)
- Michelle Dunning Chair since 2025
- Gethin James since 2025
- Graham Evans since 2018
- Joseph Annandale since 2018
- Leslie Dale since 2025
- Marie James since 2022
- Sylvia Evans since 2018
Portfolio (1)
- Dr Keir Lewis Professor since 2018
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
- Narrow spread of causes across the board
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1177810
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 04 Apr 2018
- Contact on the register
- 07902036945 · joinusatworld@outlook.com
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data