Wales Orphan and Rare Lung Disease (World)
Registered charity 1177810 CIO Registered since 2018
Operates: Throughout Wales
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Sector coverage
Commercial experience
Gaps to watch
- Several long-serving trustees could step down together
- Narrow spread of causes across the board
Boards that share trustees
- Amman Valley Hospital League of Friends 1 shared trustee
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- Amman Valley Hospital League of Friends 1 shared trustee
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | joinusatworld.com |
| joinusatworld@outlook.com | |
| Phone | 07902036945 |
| Address | Newton House, Llandyfan, AMMANFORD, Dyfed, SA18 2UD |
Finances
£1,782 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £6,046 | £2,175 |
| 2022 | £2,026 | £1,156 |
| 2023 | £1,666 | £1,289 |
| 2024 | £1,172 | £3,642 |
| 2025 | £1,782 | £496 |
What it does
What
General Charitable PurposesThe Advancement Of Health Or Saving Of LivesWho
Children/young PeopleElderly/old PeoplePeople With DisabilitiesOther Defined GroupsHow
Provides Advocacy/advice/informationCharitable objects
THE PRESERVATION AND PROTECTION OF GOOD HEALTH FOR THE PUBLIC BENEFIT IN WEST WALES, SPECIFICALLY THE COUNTIES OF PEMBROKESHIRE, CEREDIGION AND CARMARTHENSHIRE, BY PROMOTING THE AWARENESS AND UNDERSTANDING OF RARE LUNG DISEASES THROUGH SUCH MEANS AS THE TRUSTEES THINK FIT INCLUDING:-PROVIDING A FORUM FOR RARE LUNG DISEASE PATIENTS AND THEIR CARERS TO MEET AND SHARE EXPERIENCES;-OFFERING EMOTIONAL AND EDUCATIONAL SUPPORT TO RARE LUNG DISEASE PATIENTS, THEIR FAMILIES AND CARERS INCLUDING SIGNPOSTING TO OTHER RELEVANT BODIES;-ENGAGING RESPIRATORY SPECIALISTS TO REFER OTHER PATIENTS TO THE FORUM;
Governing document: CIO - FOUNDATION Registered 04 Apr 2018
Trustees (8)
- Michelle Dunning Chair since 2025
- Dr Keir Lewis Professor since 2018
- Gethin Jamesage 85 since 2025
- Graham Evans since 2018
- Joseph Annandale since 2018
- Leslie Dale since 2025
- Marie James since 2022
- Sylvia Evansage 71 since 2018
Connected charities (1)
- Amman Valley Hospital League of Friends 1 shared trustee
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