Registered charity (CIO) · Cambridge
Myelopathy.ORG
- 10 trustees
- Income £93k (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
Network
The large node is Myelopathy.ORG. Red nodes are organisations, white nodes are people. Sign in free to explore further.
Who leads it
- Helen WoodChair · since 2019
- Carol Sun-SchusterTrustee · since 2020
- Dr Aditya VedantamTrustee · since 2024
- Dr Benjamin DaviesTrustee · since 2024
- Dr Mark KotterTrustee · since 2018
- Dr Rory MurphyTrustee · since 2024
- Esther Martin-MooreTrustee · since 2026
- Iwan Lloyd SadlerTrustee · since 2021
- Mary Sheila DuganTrustee · since 2026
- Steven CzickTrustee · since 2024
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
Do you help lead this organisation? Set up its network · How it works
About
- What it does
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives
- Where
- Throughout England And Wales, United States
- Website
- www.myelopathy.org (opens in a new tab)
- Registered
- 2018
Income and spending
- YearIncomeSpending
- 2025£93k£92k
- 2024£75k£75k
- 2023£79k£97k
Earlier years
- 2022£82k£82k
- 2021£123k£75k
Income trend, 2021 to 2025.
Charitable objects
TO ADVANCE HEALTH AND EDUCATION IN ALL ASPECTS OF MYELOPATHY IN PARTICULAR BUT NOT EXCLUSIVELY BY:1. SUPPORTING AND FUNDING SCIENTIFIC RESEARCH INTO ALL ASPECTS OF MYELOPATHY AND ENSURING THE USEFUL RESULTS OF SUCH RESEARCH ARE PUBLICLY DISSEMINATED;2. RAISING AWARENESS AND UNDERSTANDING OF THE CONDITION IN ALL ITS FORMS INCLUDING SHARING CURRENT RESEARCH AND HEALTHCARE INFORMATION;3. SUPPORTING AND PROMOTING IMPROVED PHYSICAL AND MENTAL OUTCOMES FOR PATIENTS INCLUDING ESTABLISHING SUPPORTING FOR PATIENTS, CARERS AND HEALTH PROFESSIONALS
Grants received
4 grants · £70,941 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £69,941 (3 grants)
- SHAREGIFT · £1,000
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
10 trustees on the board
- Helen Wood Chair since 2019
- Carol Sun-Schuster since 2020
- Dr Aditya Vedantam since 2024
- Dr Benjamin Davies since 2024
- Dr Mark Kotter since 2018
- Dr Rory Murphy since 2024
- Esther Martin-Moore since 2026
- Iwan Lloyd Sadler since 2021
- Mary Sheila Dugan since 2026
- Steven Czick since 2024
Trustees past 6 years
- Helen Wood Chair since 2019
- Carol Sun-Schuster since 2020
- Dr Mark Kotter since 2018
First-time vs portfolio trustees
First-time (10)
- Helen Wood Chair since 2019
- Carol Sun-Schuster since 2020
- Dr Aditya Vedantam since 2024
- Dr Benjamin Davies since 2024
- Dr Mark Kotter since 2018
- Dr Rory Murphy since 2024
- Esther Martin-Moore since 2026
- Iwan Lloyd Sadler since 2021
- Mary Sheila Dugan since 2026
- Steven Czick since 2024
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1178673
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 06 Jun 2018
- Contact on the register
- 01223748405 · info@myelopathy.org
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data