The Governance RegisterEdition 2026 · Compiled 12th July 2026

Congenital Adrenal Hyperplasia Support Group

Registered charity 1178951 CIO Registered since 2018

Operates: Throughout England And Wales, Ireland, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

3
trustees on the board
9y median 9y
average tenure
9y
longest tenure
3
trustees past 6 years
9.2y
average years in governance
2 vs 0 portfolio
first-time trustees
0
company-linked trustees

Sector coverage

General Charitable Purposes 3The Advancement Of Health Or Saving Of Lives 3Education/training 1

Gaps to watch

  • Several long-serving trustees could step down together
  • Small board - little cover if a trustee leaves

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Related organisations

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Contact

Websitelivingwithcah.com
Emailsue@cah.org.uk
Phone01827872970
Address27 Fircroft, Kingsbury, TAMWORTH, B78 2JU

Finances

£10,527 latest income

YearIncomeSpending
2021£16,869£14,158
2022£14,845£5,082
2023£8,953£3,544
2024£22,692£6,464
2025£10,527£22,080

What it does

What

General Charitable PurposesThe Advancement Of Health Or Saving Of Lives

Who

Children/young PeopleElderly/old PeoplePeople With Disabilities

How

Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchActs As An Umbrella Or Resource Body

Charitable objects

THE OBJECTS OF THE CIO ARE FOR PUBLIC BENEFIT, TO PRESERVE AND PROTECT THE HEALTH OF PATIENTS WITH CONGENITAL ADRENAL HYPERPLASIA (CAH) BY PROVIDING SUPPORT AND INFORMATION TO INDIVIDUALS WITH CAH, THEIR FAMILIES AND CARERS, RAISING AWARENESS AMONG THE PUBLIC AND THE MEDICAL PROFESSION AND ADVANCING CARE/TREATMENT OF CAH BY FUNDING RESEARCH INTO CAH, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE PUBLIC BENEFIT.

Governing document: CIO - ASSOCIATION Registered 27 Jun 2018

Trustees (3)

3trustees
0aged 70+

Connected charities (1)

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