The Ehlers-Danlos Society
Registered charity 1180984 Registered since 2018
Operates: Throughout England And Wales
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How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
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- Narrow spread of causes across the board
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | https://www.ehlers-danlos.com |
| info@ehlers-danlos.com | |
| Phone | 00000000 |
| Address | Office 7, 35-37 Ludgate Hill, London, EC4M 7JN |
Finances
£1,552,526 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £429,673 | £499,547 |
| 2022 | £598,909 | £578,647 |
| 2023 | £1,217,571 | £1,217,063 |
| 2024 | £1,166,070 | £1,140,663 |
| 2025 | £1,552,526 | £1,409,241 |
What it does
What
Education/trainingDisabilityWho
People With DisabilitiesHow
Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
1. THE RELIEF OF SICKNESS:A) TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILTY SPECTRUM DISORDERS (HSD) IN THE UK THROUGH THE PROVISION OF ADVOCACY, SUPPORT, EDUCATION, PRACTICAL ADVICE AND SOCIAL EVENTS.B) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILTY SPECTRUM DISORDERS (HSD).2. EDUCATION:A) TO PROMOTE AND FINANCIALLY SUPPORT RESEARCH FOR THE PUBLIC BENEFIT ON THE SUBJECT OF EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITY SPECTRUM DISORDERS (HSD) AND TO PUBLISH USEFUL RESULTS.
Governing document: MEMORANDUM AND ARTICLES INCORPORATED 12 APR 2017AS AMENDED BY SPECIAL RESOLUTION(S) DATED 24 JAN 2018AS REGISTERED AT COMPANIES HOUSE ON 30 JAN 2018 as amended on 09 Mar 2021
Trustees (11)
- Susan Hawkinsage 67 Chair since 2020
- Aisling Green since 2023
- Anoushe Husainage 39 since 2023
- Colin O'Donnell since 2025
- Dr Akilah Cadet since 2023
- Dr Melanie Jane Macleodage 56 since 2020
- Dr Woodrow Gandyage 72 since 2020
- Frances Anne Fitzgeraldage 32 since 2023
- John B Zonarichage 55 since 2021
- Robert Rubinage 59 since 2021
- Sue Haskelage 63 since 2020
Linked company (Companies House)
The Ehlers-Danlos Society · 10722868 · Active
PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 12/04/2017
5 governing document(s) held from Companies House.
Connected charities (0)
No charities share a trustee (from current data).
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