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Registered charity · London

The Ehlers-Danlos Society

  • 11 trustees
  • Income £1.6m (2025)
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Official record Charity Commission · updated 27th September 2026 · Sources

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The large node is The Ehlers-Danlos Society. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
Education/training, Disability
Where
Throughout England And Wales
Website
www.ehlers-danlos.com (opens in a new tab)
Linked company
The Ehlers-Danlos Society
Registered
2018

Income and spending

  • YearIncomeSpending
  • 2025£1.6m£1.4m
  • 2024£1.2m£1.1m
  • 2023£1.2m£1.2m
Earlier years
  • 2022£599k£579k
  • 2021£430k£500k

Income trend, 2021 to 2025.

Charitable objects

1. THE RELIEF OF SICKNESS:A) TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILTY SPECTRUM DISORDERS (HSD) IN THE UK THROUGH THE PROVISION OF ADVOCACY, SUPPORT, EDUCATION, PRACTICAL ADVICE AND SOCIAL EVENTS.B) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILTY SPECTRUM DISORDERS (HSD).2. EDUCATION:A) TO PROMOTE AND FINANCIALLY SUPPORT RESEARCH FOR THE PUBLIC BENEFIT ON THE SUBJECT OF EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITY SPECTRUM DISORDERS (HSD) AND TO PUBLISH USEFUL RESULTS.

Grants received

1 grant · £2,500 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

Most recent

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

11 trustees on the board

4.3y median 5y
average tenure
6y
longest tenure

Trustees past 6 years

6.7y
average years in governance

First-time vs portfolio trustees

First-time (11)

8
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 11Education/training 11

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 9Property 1

Gaps to watch

  • Narrow spread of causes across the board

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£1.6m latest income · income exceeded spending in 2024 and 2025
ReservesiReserves12 x free reserves / annual expenditure, from the Part B annual return. The sector median is computed across all Part B filers in the same income band.

0.0 months of spending held in free reserves · median for charities its size: 3.9 months

20 from 9 in 2022
EmployeesiEmployeesHeadcount as filed in Part B annual returns, per financial year. Shown exactly as filed; year-on-year figures may be filed on different bases, so a comparison is only shown when the filings are plausibly comparable.

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1180984
Status
Registered
Governing document
MEMORANDUM AND ARTICLES INCORPORATED 12 APR 2017AS AMENDED BY SPECIAL RESOLUTION(S) DATED 24 JAN 2018AS REGISTERED AT COMPANIES HOUSE ON 30 JAN 2018 as amended on 09 Mar 2021
Companies House
Company number 10722868 · Active
Contact on the register
00000000 · info@ehlers-danlos.com
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

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