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Registered charity (CIO) · Harwich

Bardet-Biedl Syndrome UK (BBS UK)

Bardet-Biedl Syndrome UK (BBS UK) is a registered charity (number 1181244) based in Harwich, governed by 9 trustees. Latest income £396k (2025). Source: Charity Commission register, updated 4th October 2026.

Also known as Bardet-Biedl Syndrome UK, BBS UK (Charity Commission)

  • 9 trustees
  • Income £396k (2025)
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Official record Charity Commission · updated 4th October 2026 · Sources

Network

The large node is Bardet-Biedl Syndrome UK (BBS UK). Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.

About

What it does
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales
Website
www.bbsuk.org.uk (opens in a new tab)
Registered
2018

Income and spending

  • YearIncomeSpending
  • 2025£396k£295k
  • 2024£316k£279k
  • 2023£243k£250k
Earlier years
  • 2022£155k£94k
  • 2020£54k£55k

Income trend, 2020 to 2025.

Income source mix, 2025: Government contracts 52%. From the charity's annual return.

Charitable objects

THE OBJECTS OF THE CIO ARE:(A) TO PRESERVE AND PROTECT THE HEALTH AND PROMOTE THE WELFARE OF PERSONS DIAGNOSED WITH BARDET-BIEDL SYNDROME AND THEIR FAMILIES;(B) TO ADVANCE THE EDUCATION OF THE MEDICAL AND EDUCATIONAL PROFESSIONS AND THE GENERAL PUBLIC ON THE SUBJECT OF BARDET-BIEDL SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY AND TO PROMOTE RESEARCH FOR THE PUBLIC BENEFIT IN ALL ASPECTS OF THAT SUBJECT AND TO PUBLISH THE USEFUL RESULTS.

Grants received

3 grants · £32,135 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £32,135 (3 grants)

Most recent

  • The National Lottery Community Fund £13,6502024-07-22
  • The National Lottery Community Fund £9,5002023-08-31
  • The National Lottery Community Fund £8,9852019-03-14
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

9 trustees on the board

4.1y median 3y
average tenure
8y
longest tenure

Trustees past 6 years

4.1y
average years in governance

First-time vs portfolio trustees

First-time (9)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 9General Charitable Purposes 9The Advancement Of Health Or Saving Of Lives 9

Gaps to watch

  • No commercial or business experience on the board

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2020
2022
2023
2024
2025
incomespending£396k latest income · income exceeded spending in 2024 and 2025

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1181244
Status
Registered
Governing document
CIO - ASSOCIATION Registered 18 Dec 2018
Contact on the register
07591206680 · admin@bbsuk.org.uk
Edition
Register edition compiled 4th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data