Cure Usher Syndrome

Registered charity 1181293 CIO Registered since 2018

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

2.4y median 2y

average tenure

longest tenure

trustees past 6 years

5.5y

average years in governance

7 vs 1 portfolio

first-time trustees

company-linked trustees

Sector coverage

General Charitable Purposes 8Disability 7The Advancement Of Health Or Saving Of Lives 7Education/training 1Other Charitable Purposes 1

Commercial experience

Education 5Business services 1Manufacturing 1

Boards that share trustees

GSM Educational Trust 1 shared trustee
The National Foundation for Educational Research in England and Wales 1 shared trustee

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Related organisations

GSM Educational Trust 1 shared trustee
The National Foundation for Educational Research in England and Wales 1 shared trustee
Learning Library Similar size; both Disability
Brains Matter Charity Similar size; both Disability
The O'Sullivan Family Charitable Trust Similar size; both Disability
The Fragile X Society Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.cureushersyndrome.com
Email	pippadutton@cureushersyndrome.com
Phone	07792700660
Address	6, Valdene Drive, Worsley, Manchester, M28 7GA

Finances

£144,886 latest income

Year	Income	Spending
2020	£27,326	£6,072
2021	£6,625	£7,461
2022	£41,782	£49,420
2023	£158,361	£63,036
2024	£144,886	£158,474

What it does

What

General Charitable PurposesThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeopleElderly/old PeoplePeople With DisabilitiesOther Defined GroupsThe General Public/mankind

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Advocacy/advice/informationSponsors Or Undertakes ResearchActs As An Umbrella Or Resource Body

Charitable objects

TO PROMOTE AND PROTECT THE HEALTH OF THOSE SUFFERING FROM GENETICALLY INHERITED USHER SYNDROME, THROUGH THE PROVISION OF INFORMATION FOR PEOPLE AFFECTED BY THIS CONDITION, AND BY FUNDING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF ALL TYPES OF THE CONDITION AND PUBLISHING THE USEFUL RESULTS.

Governing document: CIO - FOUNDATION Registered 20 Dec 2018 as amended on 13 Apr 2024 as amended on 22 Aug 2025

Trustees (8)

8trustees

57median age

1aged 70+

Christopher Rowe Chair since 2024
David Ashton BSe since 2023
Graham John Dutton since 2024
Laura Nortonage 43 since 2023
Mark Jordon since 2023
Melvyn Keen since 2024
Pippa Jane Dutton since 2024
Sharon Rowe since 2024

Connected charities (2)

The National Foundation for Educational Research in England and Wales 1 shared trustee
GSM Educational Trust 1 shared trustee

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