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Registered charity (CIO) · Manchester

Cure Usher Syndrome

  • 8 trustees
  • Income £145k (2024)
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Official record Charity Commission · updated 27th September 2026 · Sources

Network

The large node is Cure Usher Syndrome. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales
Website
www.cureushersyndrome.com (opens in a new tab)
Registered
2018

Income and spending

  • YearIncomeSpending
  • 2024£145k£158k
  • 2023£158k£63k
  • 2022£42k£49k
Earlier years
  • 2021£7k£7k
  • 2020£27k£6k

Income trend, 2020 to 2024.

Charitable objects

TO PROMOTE AND PROTECT THE HEALTH OF THOSE SUFFERING FROM GENETICALLY INHERITED USHER SYNDROME, THROUGH THE PROVISION OF INFORMATION FOR PEOPLE AFFECTED BY THIS CONDITION, AND BY FUNDING SCIENTIFIC RESEARCH INTO THE CAUSES, TREATMENT AND CURE OF ALL TYPES OF THE CONDITION AND PUBLISHING THE USEFUL RESULTS.

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

8 trustees on the board

2.4y median 2y
average tenure
3y
longest tenure
0
trustees past 6 years
5.7y
average years in governance

First-time vs portfolio trustees

First-time (7)

Portfolio (1)

2
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

General Charitable Purposes 8Disability 7The Advancement Of Health Or Saving Of Lives 7Education/training 1Other Charitable Purposes 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Education 5Business services 1Manufacturing 1

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2020
2021
2022
2023
2024
incomespending£145k latest income

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1181293
Status
Registered
Governing document
CIO - FOUNDATION Registered 20 Dec 2018 as amended on 13 Apr 2024 as amended on 22 Aug 2025
Contact on the register
07792700660 · pippadutton@cureushersyndrome.com
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data