Acrodysostosis Support & Research
Registered charity 1182818 CIO Registered since 2019
Operates: Throughout England And Wales
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- Several long-serving trustees could step down together
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.acrodysostosis.com |
| info@acrodysostosis.com | |
| Phone | 07949883817 |
| Address | Bath House, Cudworth Lane, Newdigate, Dorking, Dorking, Surrey |
Finances
£2,036 latest income
| Year | Income | Spending |
|---|---|---|
| 2020 | £89,873 | £3,849 |
| 2021 | £12,391 | £63,318 |
| 2022 | £22,836 | £23,284 |
| 2023 | £5,076 | £3,925 |
| 2024 | £2,036 | £1,937 |
What it does
What
Education/trainingWho
People With DisabilitiesThe General Public/mankindHow
Provides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
THE OBJECTS OF THE CIO ARE TO RELIEVE THE NEEDS OF THOSE AFFECTED BY ACRODYSOSTOSIS DISEASE, THEIR FAMILIES, FRIENDS AND CARERS BY:-(1) PROMOTING GREATER UNDERSTANDING OF THE CAUSES, SYMPTOMS AND TREATMENT OF ACRODYSOSTOSIS DISEASE IN ALL ITS FORMS INCLUDING BY THE PROMOTION OF RESEARCH AND SHARING AND DISSEMINATING OF THE RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE GENERAL PUBLIC;(2) RAISING PUBLIC AWARENESS OF THE SYMPTOMS, NEEDS AND RELATED MEDICAL CONDITIONS OF THOSE LIVING WITH ACRODYSOSTOSIS DISEASE.
Governing document: CIO - FOUNDATION Registered 05 Apr 2019
Trustees (3)
- Nina Samantha Knight Chair since 2019
- Jan Sara Hine since 2019
- Sarah Louise Denney since 2019
Connected charities (0)
No charities share a trustee (from current data).
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