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Registered charity (CIO) · Cambridge

International Prader-Willi Syndrome Organisation

  • 12 trustees
  • Income £207k (2025)
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Official record Charity Commission · updated 27th September 2026 · Sources

Network

The large node is International Prader-Willi Syndrome Organisation. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales, Argentina, Australia, Austria and more
Website
www.ipwso.org (opens in a new tab)
Registered
2019

Income and spending

  • YearIncomeSpending
  • 2025£207k£221k
  • 2024£245k£217k
  • 2023£164k£159k
Earlier years
  • 2022£331k£268k
  • 2021£247k£162k

Income trend, 2021 to 2025.

Charitable objects

THE OBJECTS OF THE CIO ARE, FOR THE PUBLIC BENEFIT:1) TO PROMOTE THE RELIEF AND TREATMENT OF PEOPLE WITH PRADER-WILLI SYNDROME, AND TO PROVIDE SUPPORT AND ADVICE FOR SUCH PERSONS, THEIR FAMILIES AND CARERS;2) THE ADVANCEMENT OF HEALTH BY PROMOTING, SUPPORTING AND CARRYING OUT CHARITABLE RESEARCH, AND TO DISSEMINATE THE RESULTS OF SUCH RESEARCH, FOR THE PUBLIC BENEFIT INTO THE CAUSE AND TREATMENT OF PRADER-WILLI SYNDROME; AND3) TO RAISE AWARENESS ABOUT THE NEEDS OF PEOPLE WITH PRADER-WILLI SYNDROME THROUGH THE PROVISION OF INFORMATION.

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

12 trustees on the board

2.2y median 1y
average tenure
4y
longest tenure
0
trustees past 6 years
2.5y
average years in governance

First-time vs portfolio trustees

First-time (12)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 12The Advancement Of Health Or Saving Of Lives 12

Gaps to watch

  • No commercial or business experience on the board
  • Narrow spread of causes across the board
  • Mostly recent joiners - limited long-term continuity

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£207k latest income

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1182873
Status
Registered
Governing document
CIO - ASSOCIATION Registered 09 Apr 2019 as amended on 29 Nov 2019
Contact on the register
07511585700 · office@ipwso.org
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data