Registered charity (CIO) · Hampshire
Harry's Hydrocephalus Awareness Trust
To relieve sickness and to assist in the treatment and care of persons suffering from hydrocephalus and/or arachnoid cyst across the UK including by: (a) financing health professionals across the UK with an interest in paediatric arachnoid cysts...
- 7 trustees
- Income £212k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
Do you help lead this organisation? Set up its network · How it works
About
- What it does
- Education/training, Disability
- Where
- Scotland, Throughout England And Wales
- Website
- www.harrys-hat.org (opens in a new tab)
- Registered
- 2019
Income and spending
- YearIncomeSpending
- 2025£212k£193k
- 2024£200k£141k
- 2023£190k£101k
Earlier years
- 2022£53k£33k
- 2021£36k£14k
Income trend, 2021 to 2025.
Income source mix, 2022: Government grants 3%. From the charity's annual return.
Charitable objects
To relieve sickness and to assist in the treatment and care of persons suffering from hydrocephalus and/or arachnoid cyst across the UK including by: (a) financing health professionals across the UK with an interest in paediatric arachnoid cysts and/or hydrocephalus to enable them to further their knowledge and understanding ensuring the highest professional standards (b) promoting independent research into the prevention and treatment of hydrocephalus and/or arachnoid cyst provided that all useful results are disseminated to the public (c) providing information and support to people and their families/carers with hydrocephalus and/or arachnoid cyst.
Grants received
9 grants · £277,559 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £208,710 (4 grants)
- BBC Children in Need · £45,000
- Community Foundation for Surrey · £17,000 (2 grants)
- Garfield Weston Foundation · £5,000
- Crowdfunder · £1,849
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
7 trustees on the board
- Jez Hanson Chair since 2025
- Ashwin Kumaria since 2023
- Catherine Alison Kelly since 2026
- Denise Deacon since 2026
- Louise Fleming since 2023
- Matthew Coates since 2018
- Naghza Khokhar since 2022
Trustees past 6 years
- Matthew Coates since 2018
First-time vs portfolio trustees
First-time (7)
- Jez Hanson Chair since 2025
- Ashwin Kumaria since 2023
- Catherine Alison Kelly since 2026
- Denise Deacon since 2026
- Louise Fleming since 2023
- Matthew Coates since 2018
- Naghza Khokhar since 2022
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Narrow spread of causes across the board
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1183086
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 24 Apr 2019 as amended on 24 Oct 2020 as amended on 09 Dec 2020
- Contact on the register
- 07961001710 · info@harrys-hat.org
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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