Registered charity (CIO) · London
National Axial Spondyloarthritis Society
- 12 trustees
- Income £1.1m (2024)
Official record Charity Commission · updated 20th September 2026 · Sources
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Who leads it
- Hannah BruceChair · since 2025
- Claire JeffriesTrustee · since 2020
- Dr Antoni Tuck Yin ChanTrustee · since 2020
- Dr Lesley Jane KayTrustee · since 2021
- Dr Raj AmarnaniTrustee · since 2024
- Gillian EamesTrustee · since 2019
- Jane Elizabeth FreestonTrustee · since 2025
- Josephine DaviesTrustee · since 2024
- Michael Anthony FranklTrustee · since 2025
- Paul CurryTrustee · since 2019
- Rachel DavisTrustee · since 2023
- Rajeevendra Kumar MahapatraTrustee · since 2019
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Northern Ireland, Scotland
- Website
- www.nass.co.uk (opens in a new tab)
- Registered
- 2019
Income and spending
- YearIncomeSpending
- 2024£1.1m£1.1m
- 2023£1.0m£1.2m
- 2022£1.0m£1.5m
Earlier years
- 2021£1.2m£1.1m
- 2020£829k£1.2m
Income trend, 2020 to 2024.
Income source mix, 2022: Government grants under 1%. From the charity's annual return.
Charitable objects
THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH AMONG PEOPLE IN THE UNITED KINGDOM LIVING WITH THE MEDICAL CONDITION AXIAL SPONDYLOARTHRITIS WHICH INCLUDES ANKYLOSING SPONDYLITIS (TOGETHER KNOWN AS THE ‘CONDITION’) IN PARTICULAR BUT NOT EXCLUSIVELY BY: A) PROVIDING INFORMATION TO THE GENERAL PUBLIC ABOUT THE CONDITION AND PROVIDING SUPPORT AND ADVICE TO PEOPLE LIVING WITH THE CONDITION, THEIR FAMILIES, CARERS, SERVICE –PROVIDERS AND EMPLOYERS; B) ADVOCATING TO ENSURE THAT EVERY PERSON HAS TIMELY AND EFFECTIVE DIAGNOSIS, TREATMENT AND CARE OF THE CONDITION; C) FUNDING AND DISSEMINATING RESEARCH AND ANALYSIS TO ADVANCE SCIENTIFIC UNDERSTANDING OF THE CONDITION AND ITS EFFECTIVE TREATMENT.
Grants received
14 grants · £220,667 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- Garfield Weston Foundation · £90,000 (3 grants)
- The National Lottery Community Fund · £80,331 (5 grants)
- Peter Harrison Foundation · £20,000
- Department for Business, Energy and Industrial Strategy · £18,086
- Department for Digital, Culture, Media & Sport · £9,750
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
12 trustees on the board
- Hannah Bruce Chair since 2025
- Claire Jeffries since 2020
- Dr Antoni Tuck Yin Chan since 2020
- Dr Lesley Jane Kay since 2021
- Dr Raj Amarnani since 2024
- Gillian Eames since 2019
- Jane Elizabeth Freeston since 2025
- Josephine Davies since 2024
- Michael Anthony Frankl since 2025
- Paul Curry since 2019
- Rajeevendra Kumar Mahapatra since 2019
- Rachel Davis since 2023
Trustees past 6 years
- Claire Jeffries since 2020
- Dr Antoni Tuck Yin Chan since 2020
- Gillian Eames since 2019
- Paul Curry since 2019
- Rajeevendra Kumar Mahapatra since 2019
First-time vs portfolio trustees
First-time (10)
- Hannah Bruce Chair since 2025
- Claire Jeffries since 2020
- Dr Antoni Tuck Yin Chan since 2020
- Dr Lesley Jane Kay since 2021
- Dr Raj Amarnani since 2024
- Gillian Eames since 2019
- Jane Elizabeth Freeston since 2025
- Josephine Davies since 2024
- Paul Curry since 2019
- Rachel Davis since 2023
Portfolio (2)
- Michael Anthony Frankl since 2025
- Rajeevendra Kumar Mahapatra since 2019
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
3.6 months of spending held in free reserves · median for charities its size: 3.9 months · was 4.5 in 2020
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1183175
- Status
- Registered
- Governing document
- CIO - ASSOCIATION Registered 29 Apr 2019
- Contact on the register
- 02087411515 · admin@nass.co.uk
- Edition
- Register edition compiled 20th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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