Amyloidosis UK
Registered charity 1183624 CIO Registered since 2019
Operates: Throughout England And Wales, Scotland, Northern Ireland, Ireland
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Sector coverage
Commercial experience
Gaps to watch
- Several long-serving trustees could step down together
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- Pulvertaft Hand Charity 1 shared trustee
- The British Society for Surgery of the Hand 1 shared trustee
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- The British Society for Surgery of the Hand 1 shared trustee
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.amyloidosisuk.org |
| info@amyloidosisuk.org | |
| Phone | 07881914013 |
| Address | Office 7, First Floor, No 11, Riverside Industrial Park, Farnham, GU9 7UG |
Finances
£105,228 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £31,258 | £9,625 |
| 2022 | £33,000 | £31,000 |
| 2023 | £3,700 | £16,431 |
| 2024 | £1,533 | £18,297 |
| 2025 | £105,228 | £53,813 |
What it does
What
General Charitable PurposesThe Advancement Of Health Or Saving Of LivesHow
Makes Grants To OrganisationsProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
THE OBJECTS OF THE CIO ARE THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH AMONG PEOPLE IN THE UNITED KINGDOM LIVING WITH THE MEDICAL CONDITION ATTR AMYLOIDOSIS (KNOWN AS THE ‘CONDITION’) IN PARTICULAR BUT NOT EXCLUSIVELY BY:A) PROVIDING INFORMATION, SUPPORT AND ADVICE TO PEOPLE LIVING WITH THE CONDITION, THEIR FAMILIES AND CARERS;B) ADVOCATING TO ENSURE THAT EVERY PERSON HAS TIMELY AND EFFECTIVE DIAGNOSIS, TREATMENT AND CARE OF THE CONDITION;C) WORKING CLOSELY WITH ALL STAKEHOLDERS TO FACILITATE THE AVAILABILITY OF EFFECTIVE TREATMENTS FOR THE CONDITION.D) FUNDING AND SUPPORTING RESEARCH TO ADVANCE SCIENTIFIC UNDERSTANDING OF THE CONDITION AND ITS EFFECTIVE TREATMENT AND TO PUBLISH THE USEFUL RESULTS THEREOF FOR THE PUBLIC BENEFIT.
Governing document: CIO - FOUNDATION Registered 29 May 2019 as amended on 21 Feb 2024
Trustees (6)
- Carlos Heras-Palouage 61 since 2018
- David Gregory since 2019
- Julian Robert Macleodage 76 since 2025
- Paul Pozzo since 2020
- Ruth Eleanor Bramwell since 2018
- Vincent Graham Nesan Nicholas since 2018
Connected charities (2)
- The British Society for Surgery of the Hand 1 shared trustee
- Pulvertaft Hand Charity 1 shared trustee
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