Registered charity (CIO) · Twickenham
The Cavernoma Society
The Cavernoma Society is a registered charity (number 1184406) based in Twickenham, governed by 6 trustees. Latest income £15k (2025). Source: Charity Commission register, updated 4th October 2026.
- 6 trustees
- Income £15k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
Do you help lead this organisation? Set up its network · How it works
Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.
About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives
- Where
- Throughout England And Wales, Ireland, Northern Ireland
- Website
- www.cavernomasociety.org.uk (opens in a new tab)
- Registered
- 2019
Income and spending
- YearIncomeSpending
- 2025£15k£15k
- 2024£39k£42k
- 2023£23k£21k
Earlier years
- 2022£19k£25k
- 2021£29k£11k
Income trend, 2021 to 2025.
Charitable objects
THE OBJECTS OF THE CIO ARE:-A) TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF CAVERNOMA THROUGH THE PROVISION OF SUPPORT, EDUCATION, RESEARCH AND PRACTICAL ADVICE ANDB) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO CAVERNOMA.
Grants received
1 grant · £9,800 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- Department for Digital, Culture, Media & Sport · £9,800
Most recent
- Department for Digital, Culture, Media & Sport
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
6 trustees on the board
- Amy Taylor since 2022
- Caroline Leonard since 2018
- David Weeks since 2023
- Dr Marie Robinson since 2022
- Simona Stankovska since 2018
- Victoria Butler since 2022
Trustees past 6 years
- Caroline Leonard since 2018
- Simona Stankovska since 2018
First-time vs portfolio trustees
First-time (6)
- Amy Taylor since 2022
- Caroline Leonard since 2018
- David Weeks since 2023
- Dr Marie Robinson since 2022
- Simona Stankovska since 2018
- Victoria Butler since 2022
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Narrow spread of causes across the board
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1184406
- Status
- Registered
- Governing document
- CIO - ASSOCIATION Registered 15 Jul 2019
- Contact on the register
- 03301224470 · hello@cavernomasociety.org.uk
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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